Cabinet Secretary for Health and Well-Being, The Scottish Government Dear Mr Neil, As the Scottish Government considers its response to the recent New Medicines Reviews, focusing on decisions made about which health treatments are funded within the NHS, we must remember that the decisions they make

We are delighted to announce that Jean Wilson, founder member of the TSA and former Trustee has made a very welcome return to the Board. Champion of the rights of people with profound learning disabilities, Chair of charity Centre 404 and social work consultant, Jean

In November 2012 we launched our membership survey.  The survey report gives a "snap shot" across a range of issues.  The recommendations the report contains, which have been accepted by the Board of Trustees, reflect the views and experiences of the 205 TSA members who

It has come to our attention that there has been an administrative delay with items sent to the new PO Box Address: PO Box 71662, London NW3 9TE.  Please accept our sincere apologies if you have sent a cheque/correspondence to this address, and have not

The closing date for the following vacancies is 25th September 2013. Head of Research Ref: HoR-01 Location:        Home based Salary:        £26-30K (for a 28 hour week) Can you help drive forward our research strategy and raise the profile of the TSA nationally and

NICE have issued new guidance on the assessment and management of autism in children and young people.  This new guidance recommends a range of treatments and interventions to help ensure management addresses the person’s individual needs.  Interventions covered include anticipating, preventing and managing challenging

The Tuberous Sclerosis Alliance (TS Alliance) has formally announced newly updated clinical consensus guidelines for the diagnosis, surveillance and management of tuberous sclerosis complex (TSC). The 2012 International Tuberous Sclerosis Complex Consensus Group comprised 79 specialists from 14 countries. The recommendations are relevant to the

The Department of Health today published the UK Rare Diseases Strategy and has pledged to speed up the diagnosis of rare dieseases, and improve access to the medicines to treat them. Interestingly, the government also announced today that it would be investing £20m over four

All medicines have expected benefits and known risks.  The Tuberous Sclerosis Alliance in the USA has published a paper to help parents weigh up the risks and benefits when considering treatment with vigabatrin for infantile spasms or epilepsy.    The TS Alliance’s publication examines the

The TSA are delighted to announce new members of staff joining the TSA, and bringing with them a wealth of experience that can only help us to better support the TSC community. Here’s a run down of the new faces of the TSA.   HEADS