News and events
The latest announcements and news from the Tuberous Sclerosis Association
TSA Big Day and Outlook weekend 2017 – save the dates
The Outlook weekend will be held on Friday 22 and
IT switchover – emails affected
We are upgrading our computer systems and this means that
Rare Disease Day 2017
It's Rare Disease Day 2017 on February 28 - the
TSA celebrates 40th anniversary in 2017
The TSA is 40 years old this year and we
Volunteering Update 2017
A Happy New Year and a huge thank you to
Volunteers needed to review our factsheets
Why not volunteer to help us to review our information
TSABigDay 2017 workshop topics
We are planning the workshop topics for the next#TSABigDay in
NHS England Agrees to Fund Everolimus for SEGA
We are delighted to announce that NHS England will now
#Fight4Treatment -​ Julian Sturdy MP Leads Cross Party Group of MPs Lobbying NHS England Over Much-Needed Everolimus Drug
Julian Sturdy MP Leads Cross Party Group of MPs Lobbying
Christmas and New Year opening hours
Please note that from December 23, 2016 to January 3,
EUPATI Toolkit
The European Patients Academy on Therapeutic Innovation (EUPATI) has developed
Individual Funding Requests (IFRs) survey
Patient experiences of Individual Funding Requests (IFRs) survey. Have you