News and events
The latest announcements and news from the Tuberous Sclerosis Association
NHS England Agrees to Fund Everolimus for SEGA
We are delighted to announce that NHS England will now
#Fight4Treatment -​ Julian Sturdy MP Leads Cross Party Group of MPs Lobbying NHS England Over Much-Needed Everolimus Drug
Julian Sturdy MP Leads Cross Party Group of MPs Lobbying
Christmas and New Year opening hours
Please note that from December 23, 2016 to January 3,
EUPATI Toolkit
The European Patients Academy on Therapeutic Innovation (EUPATI) has developed
Individual Funding Requests (IFRs) survey
Patient experiences of Individual Funding Requests (IFRs) survey. Have you
#Fight4Treatment – on BBC Radio York
Our #Fight4Treatment campaign has also been featured on BBC Radio
#Fight4Treatment update – Mail on Sunday article
Our #Fight4Treatment was featured on page 62 of the Mail
Watch presentation from belfast TAND conference 2019
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Biggest field yet set to do iconic Great North Run for us
 We are thrilled to be able to tell you
#Fight4Treatment makes The Daily Express
NEWSFLASH Our #Fight4Treatment has made The Daily Express newspaper today
Ava wins 2016 Christmas card design comp
 Today we are absolutely delighted to be able to
The Times publishes NHS consultants’ #Fight4Treatment protest letter
Here is the text in full of the letter published