News and events
The latest announcements and news from the Tuberous Sclerosis Association
The Tuberous Sclerosis Association announces new CEO, Louise Fish
We are delighted to inform the TSC community, researchers, charity
Government announces plans to implement the UK strategy for rare disease with NHS England
Philip Dunne MP, Minister of State for Health has announced
Campaign call to write to your MP to challenge unfair access to medicine and care for people with Rare Diseases – ahead of a Westminster debate.
Recently, the All Party Parliamentary Group on Rare, Genetic and
TSA Ambassador Marie James attends Senedd for Rare Disease Day 2017
Huge thanks to Carmarthenshire-based TSA Ambassador Marie James, and her
Carers Assessments – help in Scotland
A carers assessment is a chance to discuss your needs
New booklet for young people with autism in Scotland
Scottish Intercollegiate Guidelines Network (SIGN) -Â has developed a new booklet
Rare Disease Day 2017 at the Scottish Parliament
With the theme of research, and the slogan, 'With research,
Survey on disability and housing
The Equality and Human Rights Commission (EHRC) want to hear
London Marathon 2017 – one month to go!
It's just one month to go until the Virgin Money
Bears4Rare campaign for fair and fast access to treatment for rare disease patients
Rare conditions affect approximately 1 in 17 people in the
How TS research is changing cancer treatment
If you are interested in research into TSC, and its
Rare Disease Day 2017 ‘We’ve come a long way – but there’s more to do’
 This year’s Rare Disease Day focus is research. Today, February