News and events
The latest announcements and news from the Tuberous Sclerosis Association
TSA to host the International TSC Research Conference in 2020!
The TSA is excited to announce it will again be
#everolimusforepilepsy #NHSwrongdecision #wewontgiveup Campaign Update
A sincere thank you to everyone who has been in
Message to our TS community members in England who are currently on everolimus trials
We know that NHS England's decision not to fund everolimus
NHS England ignores evidence on everolimus for TSC-related epilepsy and says it will not fund treatment that changes lives
 NHS England has announced today [Saturday 7 July 2018]
£5m investment into CAMHS Scotland welcomed by TSA
The TSA welcomes the announcement by the Scottish Government of
Recent media coverage regarding cannabis and epilepsy
Many of our community will have seen the ongoing debate
How does NHS England’s Clinical Priorities Advisory Group (CPAG) work?
 The Clinical Priorities Advisory Group (CPAG) makes recommendations on
Landmark decision as everolimus for refractory epilepsy in people with Tuberous Sclerosis Complex is accepted for use by NHS Scotland
 MEDIA RELEASE The Scottish Medicines Consortium (SMC) has announced
A Double-blind, Randomized, Placebo-controlled Study to Investigate the Efficacy and Safety of Cannabidiol (GWP42003-P, CBD) as Add-on Therapy in Patients with Tuberous Sclerosis Complex Who Experience Inadequately-controlled Seizures NCT02544763
A double-blind, randomized, placebo-controlled study to investigate the efficacy and
Positive results in topical rapamycin trial
The TSA is really pleased to hear of such positive
Announcing your new #TeamTSA fundraising contacts
At the TSA we try to give everyone who engages