News and events
The latest announcements and news from the Tuberous Sclerosis Association
Watch presentations from Belfast TAND conference 2019
On 25 January 2019, the TSA patient conference ‘Understanding TSC-Associated
London Marathon 2019 – introducing #TeamTSA
Drumroll please….. we are introducing our amazing #TeamTSA London Marathon
Goodbye and thank you Sue
It was with great sadness that we brought you news
Save the date: Outlook 2019 to take place Saturday 18 May in Bristol
The TSA is delighted to confirm that Outlook 2019 will
Belfast patient conference – Understanding TSC-Associated Neuropsychiatric Disorders (TAND)
Register your place at the TSC patient conference - Understanding
TSC community mourn the loss of Professor Sue Povey
The TSA is sorry to hear that Professor Sue Povey,
NHS England publishes its Long Term Plan
NHS England has launched its ‘Long Term Plan’, which sets
NHS England announce that everolimus is to be funded for TSC-related refractory epilepsy from April 2019
The TSA is delighted to announce that NHS England has
TSA 2018 Christmas and New Year opening hours
 The TSA office will be closed for the 2018
Data from phase III US clinical trial of Epidiolex® (cannabidiol oral solution) in TSC expected in 2019
GW Pharmaceuticals have announced that data from a phase III
#everolimusforepilepsy campaign update – November 30 2018
We have been told that the Clinical Priorities Advisory Group
First UK clinical guidelines for Tuberous Sclerosis Complex will drive higher quality and more consistent care from the NHS
First UK clinical guidelines for Tuberous Sclerosis Complex will drive