Ever since our launch almost 50 years ago, the TSA has been a proud and important funder of world-leading research into all aspects of TSC. Measuring the impact of funded research is becoming increasingly important for organisations who fund research, like the TSA. The

Back in 2020, we asked the TSC community to get involved in the Stay Calm Project, a study looking into emotional outbursts in children and young people with neurodevelopmental disorders (like TSC). The study's results have now been published, with some interesting findings. Led

The TSC Clinics Virtual challenge begins today! Our first leg is from St. George's University Hospital in London ➡ Truro! That's 266 miles - let's get there together! All this month, we want you to join the TSC Clinics Virtual Challenge: Walk, jog or

We're seeking a highly experienced, confident and capable Fundraising Lead to guide our fundraising and income generation. This is an exciting time to join a resurgent TSA team, with ambitious plans for the future. The chosen candidate will be expected to make an immediate

The TSA is delighted to confirm that Luke Langlands (former Head of Communications and Support) and Dr Pooja Takhar (former Head of Research and Policy) have been confirmed as the new Joint Chief Executives of the Tuberous Sclerosis Association. Pooja and Luke start their

Nine out of every 10 people living with Tuberous Sclerosis Complex (TSC) develop TSC-Associated Neuropsychiatric Disorders (TAND) at some point in their lives. This year, the TSA has focused it's research funding on professionals undertaking research fully focused on TAND. What the TSA wanted

UPDATE: Applications to be part of #TeamTSA at the London Marathon through our charity places are now closed. However, there's still places available at these events: The Paris Marathon (2 April 2023) Brighton Marathon (2 April 2023) Manchester Marathon (16 April 2023) Have you

The National Institute of Health and Care Excellence (NICE) has said that they'll not recommend cannabidiol (brand name Epidyolex) to treat TSC-related epilepsy in NHS England. We need YOU to help us change NICE's mind. The TSA is bitterly disappointed by NICE's decision, with

It was with great shock and sadness at the end of 2023 that the TSA announced the passing of Tom Carter, TSA Trustee and Lifetime President, following a short illness. The TSA now plays tribute to Tom Tom was a vital member of the

Note: If your child requires crisis mental health support, do not delay: Contact Childline or Samaritans. If your child is in immediate danger call 999. As caregivers and carers, there are ways we can support our children’s wellbeing beyond physical challenges. As part of