Today [Tuesday October 2] NHS England discussed the evidence that its Clinical Priorities Advisory Group (CPAG) will consider in November when it reviews the decision not to fund everolimus to treat epilepsy for people with TSC in England.  Thank you to all of you who have

This year’s TSA Annual General Meeting (AGM) is being held on Saturday 10th November at 9.15 – 9.45am at Sheffield Hallam University at the start of our Big Day event.  You can find more information about the AGM as well as the following documents http://www.tuberous-sclerosis.org/annual_reports.html

PLEASE NOTE THAT THIS HAS NOW BEEN CANCELLED Did you know we’ll be running sessions for siblings of children with TSC, aged 6 years and over during this year’s Big Day? This is a fantastic opportunity for children to meet others who have a brother

On Monday (October 22) at 4.30pm Members of Parliament will have the opportunity to take part in a Westminster Hall Debate about E-petition 221033 relating to autism and learning disability training for healthcare professionals, sponsored by Daniel Zeichner MP.  https://calendar.parliament.uk/calendar/Commons/All/2018/10/22/Daily This debate is the result

We’re looking forward to seeing hundreds of you three weeks tomorrow at our TSA Big Day 2018 at Sheffield Hallam University. For all of you planning to travel by train, please be advised that East Midlands Rail is warning that normal rail services will be

Team TSA are thrilled to be able to provide a limited number of one-to-one sessions with clinicians during this year’s Big Day 2018 on Saturday 10 November.   We received excellent feedback from attendees last year – it was a great opportunity for families to

For all those planning to use Northern Rail services to travel to our TSA Big Day at Sheffield Hallam University on Saturday, 10 November, please be advised that strike action is planned by Northern Rail workers for this day. For more information please see https://www.northernrailway.co.uk/strike We

Team TSA are pleased to provide you with the full agenda for this years’ Big Day, which takes place on Saturday 10 November at Sheffield Hallam University:    08:45 – 10:00 Registration  09:15 – 09:45 TSA’s Annual General Meeting (AGM)  09:45 – 10:00 Short break  10:00

We’re disappointed to announce that this year’s siblings group at the Big Day on Saturday 10 Nov at Sheffield Hallam University, has been cancelled.  This is due to a very small number of bookings received for this group. We apologise for any inconvenience caused.  Please