In the UK, 1 in 17 people will be affected by a rare disease at some point in their life: this amounts to approximately 3.5 million people. Rare, genetic and undiagnosed conditions are often life-long and serious, affecting multiple systems of the body. Many of

A new project has been launched by The Salvesen Mindroom Centre, in collaboration with The University of Edinburgh and The James Lind Alliance and the team behind it would love to get the opinions of as many people as possible.   Research Priorities for Learning Difficulties in Children and

The Bristol Regional Group met on Saturday, 10 June at Windmill Hill City Farm for the first time. The venue proved to be a big draw with around 20 adults and children affected by TSC from the South West regional coming along to enjoy the

Hello. My name is Louise Fish, and I have been in post as the TSA’s new Chief Executive since 5 June.  As many of you already know, the TSA is celebrating its 40th anniversary this year and I am honoured to be the organisation’s second

Between Wednesday 14 June and Friday 16 June please take a look at our Twitter feed www.twitter.com/uktsa where we are supporting the Association of Medical Research Charities #charityimpact campaign. The @AMRC Twitter campaign is aiming to show just how much money 140 UK charities, including the Tuberous Sclerosis Association, are contributing

The TSA is thrilled that TSA Trustee and Head of Research Strategy Dr Chris Kingswood has won the 2017 Manuel R. Gomez Award. Dr Kingswood received this award on Thursday 22 June 2017 at the US TS Alliance and LAM Foundation ‘2017 International Research Conference

The TSA would like to send huge congratulations to Professor Julian Sampson who has been awarded the 2017 Manuel R. Gomez Award. Professor Sampson received this award on Thursday 22 June 2017 at the US TS Alliance and LAM Foundation ‘2017 International Research Conference on