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Outlook virtual meeting

18 April 2020, 1pm – 3:30pm

Are you an adult mildly affected by TSC? Outlook meetings are an opportunity to make new and meet old friends, share experiences about TSC and attend interesting  workshops and talks.

All adults mildly affected by TSC will receive a warm welcome at Outlook, no matter where you are from in the UK or whether it is your first time at Outlook or you come every year.

Social distancing and self-isolation wasn’t a barrier to the Outlook community coming together in 2020, with the event being hosted virtually for the first time!

You’ll also find lots of handy information about the meeting below. Be sure to get in touch with any questions via comms@tuberous-sclerosis.org / 0300 222 5737.

Outlook is an event hosted by the TSA, where adults mildly affected by TSC can come together and connect.

Offering a relaxed, open and understanding environment of the impact that living with TSC can have on individuals and families, Outlook is one of the longest-running events hosted by the TSC.

This year, we hosted a virtual Outlook session for the first time as a result of social distancing and self-isolation measures, to bring the TSC community together during this time.

The Outlook virtual meeting 2020 took place via web conferencing platform Zoom on Saturday 18 April between 1pm – 3:30pm.

As with all Outlooks, we worked hard along with our community committee to make Outlook virtual meeting 2020 a great day!

The Outlook virtual meeting 2020 featured:

  • A community-led session on the challenges and opportunities of living with TSC
  • An opportunity to meet and get to know the TSA’s new Support Line Advisers, Mega and Anna
  • A session on the new TSA support line, such as what to expect and how the service works for all nations of the UK: England, Scotland, Wales and Northern Ireland

Not sure if you would want to take part in a session or workshop on the day? No problem! At Outlook, you can go at your own pace and choose how much you want to get involved.

Outlook is targeted towards adults (aged 18+) who are mildly affected by TSC.

Outlook is a warm, friendly and understanding space. You will be given a very warm welcome amongst people who understand the impact that TSC can have on individuals and families. Whether you come to Outlook every year or if this is your first time, we will be delighted to have you there!

We are always looking for ideas and advice from the TSC community on how to shape all of our events, including Outlook! If you have any suggestions, be sure to let us know by contacting comms@tuberous-sclerosis.org.

The meeting started with an update on the new TSA support line. Attendees discussed what the support line is and how it can be accessed.

The session also included a special meet and greet from Anna and Mega, the TSA’s new support line advisers, who talked about their professional background is support services and their passions for helping the TSC community.

You can read more about the TSA’s support line here.

The second session of the day came from Heather Carter, Emotional Freedom Technique (EFT) practitioner and founder of Ready For Change Now. Attendees took part in a practical introduction to EFT, with advice on how EFT might be useful in reducing stress and anxiety.

Thank you to Heather for logging in and offering this great workshop, showing that anything is possible virtually!

You can find out more about Heather Carter here.

In our final main session, community member and long-standing Outlooker Corinne Swainger chaired a talk focused on the challenges and opportunities of being mildly affected by TSC.

Attendees discussed their personal experiences of being mildly affected by TSC, as well as looking at ways in which the condition affects all.

“Over the past 15 years, the Outlook event has given me more confidence in myself, living and working with TSC on a daily basis. It’s a chance to have fun, find out how others are dealing with similar challenges, and learn about new medical treatments and opportunities. I’ve also made some fabulous friends I keep in touch with through social media.”

– Outlooker

“I find Outlook events informative. You get to learn a lot about TSC and take part in workshops. You can speak to and meet people who live with TSC, so you don’t feel alone. You can also become pen friends with Outlookers later or socialise on social media”

– Megan Hattersley

Make a one off or regular  donation

£10 Means that we can send a support pack to a family who has just received a life-changing TSC diagnosis, ensuring that they do not go through this time alone.

£25 Can help us develop materials that are included in our support services, flagship events or campaigns.

£50 Can provide laboratory equipment for a day’s research into the causes, symptoms, management or treatment of TSC.

To provide help for today and a cure for tomorrow.