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NHS TSC clinic update meetings

Confirmed events:

• Belfast TSC Clinic virtual catch-up 2022. Thursday 10 March 2022, 6pm – 7pm (more information here)
Cardiff TSC Clinic update. Wednesday 15 June, 6pm – 7pm (registration now open)
• St George’s TSC Clinic (London) virtual catch-up 2022.
Wednesday 10 August, 6pm – 7pm (registration now open)

There are currently 19 NHS TSC Clinics throughout the UK, with specialist healthcare professionals in these clinics who are experts in the diagnosis, treatment and management of TSC. The TSA offers opportunities to hear from some of these clinics throughout the year, with virtual catch-up events.

The TSA recommends that everyone affected by TSC is registered with and has regular check-ups with a local NHS TSC clinic. The TSA’s virtual clinic updates are free to attend, and aim to cover England, Scotland, Wales and Northern Ireland, as the experiences of the TSC community across the four UK nations will be different. At these events, you can expect topics such as:

  • Typical ways to be referred to a TSC clinic
  • The work of the TSC clinic and any recent updates
  • TSC treatment and management next steps, including medicine access updates
  • A Q&A where you can put your questions to the clinic

The 2021 virtual clinic update with the Cardiff TSC Clinic can be viewed below.

You can read more about NHS TSC Clinics here, and find where your local NHS TSC Clinic is here.

Make a one off or regular  donation

£10 Can allow us to send a welcome pack to a family who has just received a life-changing TSC diagnosis, ensuring that they do not go through this time alone.

£25 Can help us develop materials that are included in our support services, flagship events or campaigns.

£50 Can provide laboratory equipment for a day’s research into the causes, symptoms, management or treatment of TSC.

To provide help for today and a cure for tomorrow