A legacy gift to the TSA helps drive long-term progress in the fight against TSC.
It supports:
- Ground breaking research into better treatments and, ultimately, trying to find a cure for TSC.
- Lifelong support for individuals and families through information, resources, and community networks.
- Advocacy efforts to raise awareness, improve diagnosis, and influence policy for better care and support services.
- Hope for future generations, ensuring that those affected by TSC are never alone and always have access to help and hope.
By leaving a gift in your Will, you can create a meaningful legacy that transforms lives for years to come.
Gifts in Wills are hugely valuable to the TSA. Without them, we simply wouldn’t be able to provide the services we do, like our support line which the TSC community and their families can call whenever they urgently need help.
We are hugely grateful for everyone who leaves us a gift in their Will. If you choose to do so, we will make sure to use the funds as effectively as possible, with the aim of transforming the lives of families coping with TSC, now and in the future.
Why should I make a Will?
A Will is the only way of ensuring that your dependents are provided for in the way you wish after your death. If you die without a Will, a court will appoint administrators to deal with the distribution of everything you own.
What about my loved ones?
The beauty of leaving a gift in your Will to a charity is that you can make sure your friends and family are taken care of first. After them, you can then leave a donation to a charity you care about like the TSA.
What types of gifts are there?
There are two main types of gift that you can leave:
Residuary Gift
A percentage gift (also known as a residuary gift). This is a gift of all or part of what is left of your estate after taxes and debts are paid and all your other legacies have been distributed – known as the ‘residue’.
I give % of the residue of my estate to the Trustees of the Tuberous Sclerosis Association (registered charity number 1039549), Courtenay House, Pynes Hill, Exeter, EX2 5AZ to apply for the benefit of the charity in such manner as they in their discretion think fit absolutely but not imposing any binding liability on the Trustees in this respect.
Pecuniary Gift
A cash gift (also known as a pecuniary gift). This could be a specified sum of money or perhaps a specific item such as a gift of jewellery, stocks or property.
I give the sum of pounds (to be written in words) / £ (in figures) to the Trustees of the Tuberous Sclerosis Association (registered charity number 1039549), Courtenay House, Pynes Hill, Exeter, EX2 5AZ to apply for the benefit of the charity in such manner as they in their discretion think fit absolutely but not imposing any binding liability on the Trustees in this respect.
What type of gift is best for the TSA?
All legacy gifts are hugely appreciated, but a residuary gift is the most effective way of remembering us in your Will, because it ensures that the value of your gift is not affected by inflation and you don’t have to change your Will if your circumstances change.
I plan to include the TSA in my Will. Should I let you know?
You are under no obligation whatsoever, but if you let us know your intentions, we will be able to plan ahead and carry on providing vital support services for families, with the confidence that we have funds in place to meet challenges that they may face in the future. We will thank you personally and keep you up-to-date with the vital work that is happening at the TSA.
How will you use my gift?
We do everything we can to make sure that any gift is used where the need is greatest. We keep our fundraising costs to a minimum and you can be sure that your money will be spent wisely and according to your wishes.
How can I change my Will?
Never write on your Will, as that could invalidate it. If you are making major changes, you might need to write a new Will.
What about inheritance tax?
At the moment, if your estate is worth over £325,000, your loved ones could end up paying Inheritance Tax at 40%. This means that they might receive less than you intended. By leaving a gift in your Will to the TSA for the excess of your estate above £325,000, you can make sure your family receives the full amount intended to them.
What if I want to find out more?
We recommend speaking to a solicitor or a legal advisor. The Law Society can help you find a solicitor near to you.
Get in touch
If you’d like to tell us whether you intend to leave a legacy to the TSA, please click the button below to provide the details of your legacy and a member of the team will be in touch.
If you have any questions about leaving a legacy or you are the executor of a Will and it includes a gift to the TSA, please get in touch.
You can contact our Head of Income Generation, Laura Larrett at laura.larrett@tuberous-sclerosis.org or phone 0300 222 5737.
Make a one off or regular donation
£10 Can allow us to send a welcome pack to a family who has just received a life-changing TSC diagnosis, ensuring that they do not go through this time alone.
£25 Can help us develop materials that are included in our support services, flagship events or campaigns.
£50 Can provide laboratory equipment for a day’s research into the causes, symptoms, management or treatment of TSC.
To provide help for today and a cure for tomorrow