We’re investing in transformational research to better understand the lifelong impact of TSC, improve treatment options, and optimise care from early diagnosis.

Every discovery starts in the lab – but with your help, it doesn’t stop there. 

For the 1 million people worldwide living with TSC, every breakthrough brings hope. We are funding pioneering research to fast-track discoveries from the lab to real-world treatments – helping families today and transforming lives for generations to come. 

  • 1 in 6000 babies born with TSC 
  • Average diagnosis delay: 3 years 
  • 0 cures – yet! 
  • Your donation can change that 

After funding four brilliant projects in the first grant round, we’re excited to continue the momentum and aim to support up to four seedcorn grants in 2026/27. This campaign will help make these grants possible.

We’re proud to launch our brand new three-year research strategy. We’re investing in transformational research to:

Understand the lifelong impact of TSC

Improve treatment options through collaborations and innovation 

Optimise care from the earliest diagnosis through adulthood 

At the Heart of TSC: Turning Research into Real Life

Donate today

Every pound brings progress closer 

Research in Detail

Discover more about our TSA grant researchers and their projects that will generate the preliminary data, build collaborations and shape the development of a TSC registry.

Meet our researchers – COMING SOON

TSA Seedcorn Award

Four awards of up to £10,000 each, supporting early-stage or exploratory projects that can generate preliminary data, build collaborations, or strengthen applications for larger funding. 

TSC Registry and Longitudinal Data

This award will offer up to £55,000 in match funding to support an excellent PhD candidate to initiate and shape the development of a TSC registry by gathering, organising and analysing longitudinal data.

Every research advance brings us closer to a world where TSC no longer defines a person’s future.

Marie’s story

When Marie, husband Perry and son Trystan took part in their first TSC research study it was a game changing day for them and for the future of TSC.

Read more

Give now to help families achieve a better future

By making a donation today you are securing the future of research campaigns for the TSA. 100% of every donation made towards our campaign From Research to Real Life will go directly towards the aims of our Research Strategy.

Click below to find out the ways you can donate, no matter how big or small we have a option that best suits you.

Donate today

Become a research champion

Download your toolkit to bring this campaign to your school, workplace or community.

Find out more