We welcome in the TSC community who live in Northern Ireland to the virtual Northern Ireland Get Together 2021The Northern Ireland Get Together 2021, taking place on Saturday 13 March 1pm - 3pm, is an opportunity to connect with others in the TSC community who
Many families in the TSC community have questions about next steps for themselves and their children who live with TSC, as we work through the covid-19 pandemic. Here, we hope to shed light on all-things related covid-19 and children who live with TSC. Join
Are you an adult mildly affected by TSC? Join us for the Outlook 2021 virtual event on 17 April and get to know others in the TSC community!All adults mildly affected by TSC will receive a warm welcome at Outlook, no matter where you are
TSC and mental health: A values-based approach to improving mental health (ACT) In the webinar, Dr Jennifer Black (Clinical Psychologist, Bristol Royal Hospital for Children) will introduce skills that allow you to deal with difficult thoughts and feelings, so they have less of an
Do you want to know about the impact of sleep on wellbeing, behaviour and managing TSC in children living with the condition? Join us for this live session, where sleep experts Dr Stacey Bissell (Research Fellow, University of Birmingham), Dr Caroline Richards (Senior Lecturer,
Virtual event: TSC and its impact on Skin In this virtual event, we welcome Dr Lea Solman (Consultant in Paediatric Dermatology, Great Ormond Street Hospital) to discuss all-things skin-related in the world of TSC. Skin and dermatology issues are some of the most significant
Do you want to find out more about supporting siblings whose brothers or sisters live with TSC? The TSA is delighted to host 'Introduction to supporting siblings', a special virtual workshop organised in partnership with siblings charity, Sibs. Presented by Sibs, this workshop is
The TSA's Annual General Meeting (AGM) 2021 will take place Thursday 18 November, 7pm - 8pm. The AGM will take place virtually, via a video conferencing platform. The AGM is a great opportunity to hear from the TSA and to make sure that we understand
Virtual event: TSC and lymphangioleiomyomatosis (LAM). Around three in every 10 women who live with TSC, and a very small number of males, also develop complications in the lungs, called ‘lymphangioleiomyomatosis’ (or ‘LAM’). The impact and severity that LAM can have on a person
Do you live in Wales and are affected by TSC? Join us for an important annual update from the Cardiff NHS TSC Clinic On Wednesday 8 December, 6pm - 7pm, the TSA welcomes Dr Jenny Gardener (Consultant Clinical Geneticist), Dr Anurag Saxena (Consultant Paediatric
