The TSA is delighted to confirm that Luke Langlands (former Head of Communications and Support) and Dr Pooja Takhar (former Head of Research and Policy) have been confirmed as the new Joint Chief Executives of the Tuberous Sclerosis Association. Pooja and Luke start their

Nine out of every 10 people living with Tuberous Sclerosis Complex (TSC) develop TSC-Associated Neuropsychiatric Disorders (TAND) at some point in their lives. This year, the TSA has focused it's research funding on professionals undertaking research fully focused on TAND. What the TSA wanted

UPDATE: Applications to be part of #TeamTSA at the London Marathon through our charity places are now closed. However, there's still places available at these events: The Paris Marathon (2 April 2023) Brighton Marathon (2 April 2023) Manchester Marathon (16 April 2023) Have you

The National Institute of Health and Care Excellence (NICE) has said that they'll not recommend cannabidiol (brand name Epidyolex) to treat TSC-related epilepsy in NHS England. We need YOU to help us change NICE's mind. The TSA is bitterly disappointed by NICE's decision, with

It was with great shock and sadness at the end of 2023 that the TSA announced the passing of Tom Carter, TSA Trustee and Lifetime President, following a short illness. The TSA now plays tribute to Tom Tom was a vital member of the

Note: If your child requires crisis mental health support, do not delay: Contact Childline or Samaritans. If your child is in immediate danger call 999. As caregivers and carers, there are ways we can support our children’s wellbeing beyond physical challenges. As part of

One of the most challenging aspects of TSC is the ongoing struggle that individuals and even whole families can have with sleep. A new study is hoping to help us better understand sleep in children with TSC and its connection to behaviours that can

Our website is packed with information about TSC, as we strive to be the most useful resource available on the condition. We recently updated our page on genetics and TSC As a rare condition, we know that it can be difficult to find information

The festive season can be an exciting and special time for spending time with loved ones, eating festive foods and celebrating. However, for people living with TSC, this busy time can be stressful or overwhelming due to both the physical and mental aspects of

The small TSA team is currently busy rebuilding. As part of this, we've been delighted to welcome Jan Burns as our new Head of Fundraising! Jan takes over this vital role following a wide range of fundraising and financial roles. So people can get