Our website is packed with information about TSC, as we strive to be the most useful resource available on the condition. We recently updated our page on genetics and TSC As a rare condition, we know that it can be difficult to find information
The festive season can be an exciting and special time for spending time with loved ones, eating festive foods and celebrating. However, for people living with TSC, this busy time can be stressful or overwhelming due to both the physical and mental aspects of
The small TSA team is currently busy rebuilding. As part of this, we've been delighted to welcome Jan Burns as our new Head of Fundraising! Jan takes over this vital role following a wide range of fundraising and financial roles. So people can get
Salary: £28,000, full time (35 hours per week). The TSA is looking for an enthusiastic, knowledgeable and experienced person to join our small but ambitious fundraising team. You'll help the TSA to bring in the income needed for us to be here for the
The TSA is delighted to confirm that the National Institute of Health and Social Care Excellence (NICE) has approved funding of cannabidiol (brand name Epidyolex) for TSC-related epilepsy! The outcome means that cannabidiol, an important treatment option in TSC-related epilepsy, will be available to
We're pleased to add another important member to the small TSA team. Welcome to Amy, the latest TSA recruit! Amy joins the TSA as a TSA Support Line Adviser, meaning that she'll be part of our vital support services team. Amy shared the following
Salary: £19,600, part time (3.5 days per week).We are looking for an experienced, confident and capable Research and Partnerships Officer to provide overall support to the TSA’s research function. This role will appeal to someone who has excellent inter-personal and organisation skills, is passionate about
We’re recruiting an exceptional person with a proven track record in finance management to join our board of trustees. Salary: Unpaid / voluntary About being a trustee The Charities Act 2011 defines charity trustees as the people responsible under the charity’s governing document for
