This survey has now ended - thank you to everyone who participated A new survey organised by a research consultancy, on behalf of a pharmaceutical company, is looking to better understand the impact of TSC on caregivers of people living with the condition and
The TSA recently updated our range of covid-19 information pages on our website and on the TSA Support Line. This is following an update from the Joint Commission on Vaccines and Immunisation (JCVI) on their guidance around vaccinations of children aged 12 and over.
The annual International TSC Research Conference is a very important event for the TSC research community, giving TSC researchers and clinicians from around the world the opportunity to share their latest discoveries and plan new collaborations. The TSA was delighted to host this year’s
International guidance for the diagnosis and management of Tuberous Sclerosis Complex (TSC) has been updated. The refreshed guidance now gives a greater focus on early surveillance, TSC-Associated Neuropsychiatric Disorders (TAND) and new treatments recently approved internationally for TSC. The need to update international guidance
The road to understanding how TSC affects you or a loved one following a diagnosis can be confusing, frustrating and very difficult. The TSA is here for everyone at all stages of their TSC journey - including the opening days, weeks and months -
Following the International TSC Research Conference 2021 (ITSCRC2021), which took place 17-19 June 2021, the TSA is delighted to share the ITSCRC2021 community recap page. The recap page provides an overview of the exciting research that took place at the conference, including exclusive videos
This article was originally published in an issue of our community magazine, Scan. There are an estimated 13.6 million unpaid carers in the UK, including many people in the TSC community who care for a loved one who lives with TSC. Being a carer
Marinus Pharmaceuticals has released positive initial results of ganaxolone in TSC-related epilepsy, with the phase 2 trial demonstrating a reduction in seizure frequency in people living with TSC-related epilepsy. The encouraging findings pave way for a larger study of the medicine, expected to begin
As summer draws to a close, it's the time when schoolchildren and others in education across the UK are preparing (or have recently) returned to learning. For those affected by TSC, a quick check that everything has been prepared for the new academic year
