***Thanks to your incredible generosity we've hit our Big Give target, meaning that the TSA Support Fund can operate throughout all of next year. Although donations through The Big Give will no longer be doubled, please continue to kindly donate through
The Early Development in Tuberous Sclerosis (EDiTS) study, which could lead to important findings about the development of children with TSC, has entered a new phase and is seeking participants. The EDiTS study team - part-funded by the TSA - are looking for children
The Welsh Government has today (Friday 10 December) approved a recommendation from the All-Wales Medicines Strategy Group (AWMSG) that cannabidiol (brand name Epidyolex®) is funded within Wales for TSC-related refractory epilepsy, meaning that people living with TSC in Wales will be able to access
The UK Government has announced that people who are at a higher risk of serious illness from covid-19 – which includes some people in the TSC community – will be among the first in the world to access antiviral and antibody treatments for covid-19
New TSC research is looking at whether a type of talking therapy (called 'Acceptance and Commitment Therapy' or 'ACT') can improve the wellbeing of young people who live with TSC. The experts leading the research, which is part-funded by the TSA, are looking for
Decision-makers in Scotland have today (Monday 7 February 2022) approved Epidyolex (generic name ‘cannabidiol’) to treat epilepsy-related Tuberous Sclerosis Complex (TSC). The news means that the TSC community in Scotland will be able to access this important new medicine from May 2022 (within 90
Today (11 February) is International Day of Women and Girls in Science, a United Nations-led initiative to highlight the huge impact that women and girls have in science - including TSC research. The main reason for the awareness day us to encourage more women
The latest issue of Scan - the TSA's own community magazine - is now available to read online Scan March 2022 focuses on outlining the TSA's plans for 2022 and beyond, as we mark the slow and eventual move a life with the covid-19
Ever since our launch almost 50 years ago, the TSA has been a proud and important funder of world-leading research into all aspects of TSC. Measuring the impact of funded research is becoming increasingly important for organisations who fund research, like the TSA. The
Back in 2020, we asked the TSC community to get involved in the Stay Calm Project, a study looking into emotional outbursts in children and young people with neurodevelopmental disorders (like TSC). The study's results have now been published, with some interesting findings. Led
