Marinus Pharmaceuticals has released positive initial results of ganaxolone in TSC-related epilepsy, with the phase 2 trial demonstrating a reduction in seizure frequency in people living with TSC-related epilepsy. The encouraging findings pave way for a larger study of the medicine, expected to begin

As summer draws to a close, it's the time when schoolchildren and others in education across the UK are preparing (or have recently) returned to learning. For those affected by TSC, a quick check that everything has been prepared for the new academic year

A new survey, developed in partnership with the TSA, is investigating the experiences of living with facial angiofibromas (FA) and TSC. This research, conducted by a research agency on behalf of a pharmaceutical company, could uncover vital information on the needs of people who

As we have done throughout the covid-19 pandemic, the TSA is working hard to provide clear and easy to understand information regarding covid-19 booster and third jabs. Here, we provide an overview on both jabs, and what they might mean for the TSC community.

This year, the TSA has re-introduced its popular festive greeting card design competition, giving one lucky person the opportunity to have their festive design printed and sold as part of our range of cards and goodies during the holiday season. We're now delighted to

The TSA is delighted to announce that the final London matinee performance of Sir David Suchet CBE’s latest West End show, Poirot and More, A Retrospective, will be dedicated to the TSA and the TSC community. Taking place on Saturday 22 January at

The TSA's Annual General Meeting (AGM) 2021 recently took place. A recording of the meeting is now available, for those in the TSC community who were unable to join live. The AGM 2021 event recording can be found below and here. Viewers may also