On 25 January 2019, the TSA patient conference ‘Understanding TSC-Associated Neuropsychiatric Disorders (TAND)’ took place at Belfast City Hospital.  The meeting featured a full day of varied and interesting talks and workshops from a wide range of TSC professionals including:  Prof Petrus de Vries (Professor

As the countdown to Rare Disease Day 2019 begins, the TSA is proud to announce their support for this internationally-recognised occasion and want you to get involved!  Organised by patient organisation EURORDIS, Rare Disease Day takes place on 28 February and is an important opportunity

Last month, we were saddened to share the news that pioneer geneticist and TSC researcher Professor Sue Povey had passed away. University College London are organising a Memorial Symposium in honour of Professor Povey’s remarkable work, taking place on Friday 12 July. If you are

The TSA is pleased to announce its official support for Rare Disease UK’s Rare Reality campaign, which has been launched in the run-up to Rare Disease Day 2019 on 28 February.  Rare Reality aims to illustrate the experiences of people with rare diseases and those

The TSA are looking for two new people to join our team, with positions available for a new Head of Research and an Events and Communications Assistant. More information on the roles, their requirements and how to apply are available on our vacancies page.

In honour of Rare Disease Day our CEO, Louise Fish, took the time to explain why today is such an important day for the millions of people affected by a rare disease worldwide, including people living with TSC: Rare Disease Day (28 February 2019) is an

The TSA were very saddened to hear of the passing of Stephen Dale, a prominent and popular member of the TSA Outlook Group. Tributes and kind messages for Steve have flooded in, including the following two tributes by former TSA Trustee, Corinne Swainger, and Steve’s

The TSA is excited to announce a very special auction which is now underway: Two tickets to see Arthur Miller’s The Price in the London West End, PLUS post-performance champagne drinks with the play’s star, David Suchet! All proceeds of the auction will go towards

To help the TSA best serve our community and support those affected by TSC, we have developed a short survey so that we can better understand how people use our website. The survey can be completed here: https://www.surveymonkey.co.uk/r/2VL8TDF. The survey should take around two minutes