We’re looking forward to seeing hundreds of you three weeks tomorrow at our TSA Big Day 2018 at Sheffield Hallam University. For all of you planning to travel by train, please be advised that East Midlands Rail is warning that normal rail services will be

Team TSA are thrilled to be able to provide a limited number of one-to-one sessions with clinicians during this year’s Big Day 2018 on Saturday 10 November.   We received excellent feedback from attendees last year – it was a great opportunity for families to

For all those planning to use Northern Rail services to travel to our TSA Big Day at Sheffield Hallam University on Saturday, 10 November, please be advised that strike action is planned by Northern Rail workers for this day. For more information please see https://www.northernrailway.co.uk/strike We

Team TSA are pleased to provide you with the full agenda for this years’ Big Day, which takes place on Saturday 10 November at Sheffield Hallam University:    08:45 – 10:00 Registration  09:15 – 09:45 TSA’s Annual General Meeting (AGM)  09:45 – 10:00 Short break  10:00

We’re disappointed to announce that this year’s siblings group at the Big Day on Saturday 10 Nov at Sheffield Hallam University, has been cancelled.  This is due to a very small number of bookings received for this group. We apologise for any inconvenience caused.  Please

First UK clinical guidelines for Tuberous Sclerosis Complex will drive higher quality and more consistent care from the NHS The Tuberous Sclerosis Association (TSA) is delighted to announce the publication of the first UK clinical guidelines for the management and surveillance of Tuberous Sclerosis Complex

We have been told that the Clinical Priorities Advisory Group have now met and have made their recommendations to NHS England – although as yet we do not know what that decision is. We have been given to understand that NHS England will share this

GW Pharmaceuticals have announced that data from a phase III US clinical trial of Epidiolex (a cannabidiol oral solution) in people living with tuberous sclerosis complex (TSC) is expected in the first half of 2019. Epidiolex is currently approved in the United States as a

  The TSA office will be closed for the 2018 Christmas period between Tuesday 25 December 2018 and Tuesday 1 January 2019. Although some members of the team will still be around during some of this time, responses from us may take longer than usual

The TSA is delighted to announce that NHS England has backed recommendations from the Clinical Priorities Advisory Group to fund everolimus for the treatment of refractory epilepsy in people with Tuberous Sclerosis Complex (TSC) in England. Everolimus will be funded from April 2019. NHS England’s