It was with great sadness that we brought you news earlier this month that Professor Sue Povey, a pioneer in the field of genetics and TSC, had passed away. Here Professor Julian Sampson (Director, Division of Cancer and Genetics, Cardiff University and Professor Sue Povey’s

Drumroll please….. we are introducing our amazing #TeamTSA London Marathon 2019 team. Please read below to learn about our fantastic five and why they have chosen to run to raise funds for the TSA! Also included are all the ways you can support them! Steve

On 25 January 2019, the TSA patient conference ‘Understanding TSC-Associated Neuropsychiatric Disorders (TAND)’ took place at Belfast City Hospital.  The meeting featured a full day of varied and interesting talks and workshops from a wide range of TSC professionals including:  Prof Petrus de Vries (Professor

As the countdown to Rare Disease Day 2019 begins, the TSA is proud to announce their support for this internationally-recognised occasion and want you to get involved!  Organised by patient organisation EURORDIS, Rare Disease Day takes place on 28 February and is an important opportunity

Last month, we were saddened to share the news that pioneer geneticist and TSC researcher Professor Sue Povey had passed away. University College London are organising a Memorial Symposium in honour of Professor Povey’s remarkable work, taking place on Friday 12 July. If you are

The TSA is pleased to announce its official support for Rare Disease UK’s Rare Reality campaign, which has been launched in the run-up to Rare Disease Day 2019 on 28 February.  Rare Reality aims to illustrate the experiences of people with rare diseases and those

The TSA are looking for two new people to join our team, with positions available for a new Head of Research and an Events and Communications Assistant. More information on the roles, their requirements and how to apply are available on our vacancies page.

In honour of Rare Disease Day our CEO, Louise Fish, took the time to explain why today is such an important day for the millions of people affected by a rare disease worldwide, including people living with TSC: Rare Disease Day (28 February 2019) is an

The TSA were very saddened to hear of the passing of Stephen Dale, a prominent and popular member of the TSA Outlook Group. Tributes and kind messages for Steve have flooded in, including the following two tributes by former TSA Trustee, Corinne Swainger, and Steve’s