To help the TSA best serve our community and support those affected by TSC, we have developed a short survey so that we can better understand how people use our website. The survey can be completed here: https://www.surveymonkey.co.uk/r/2VL8TDF. The survey should take around two minutes
The TSA is delighted to confirm that free tickets for Outlook 2019 are now available via Eventbrite here, with more information on what is planned for the day available here. Outlook 2019 will take place on Saturday 18 May at the Bristol Mercure Holland House
The TSA is pleased to share our summary of the first ever UK clinical guidelines for TSC, which were published by Oxford University Press in QJM: An International Journal of Medicine last year. The UK clinical guidelines summary can be viewed and downloaded here: {module_literature
A new project co-funded by the TSA is to be carried out by Dr Elaine Dunlop and her team at Cardiff University. Here, we provide an overview of the new project and speak to Dr Dunlop about the research and her work in the TSC
The TSA is delighted to announce that a major worldwide project to help researchers and clinicians better understand and treat neuropsychiatric disorders of TSC patients has been awarded funding. Co-funded by the TSA and the King Baudouin Foundation, the project marks a significant milestone in
The Institute of Medical Genetics, Cardiff University, has set up a research project which hopes to further our understanding of the connection between kidney disease and Tuberous sclerosis (TSC). Why is this research being done? Many TSC patients also have kidney problems, but not all.
The 2019 Prudential RideLondon-Surrey 100 takes place 3-4 August and we can now introduce you to the fantastic #TeamTSA team who are taking on the challenge! The eight cyclists will put on their cycling gear to brave the 100-mile journey to raise funds for the
 The TSA is delighted to confirm that Big Day, our biggest event of the year, is back for 2019! Big Day 2019 will take place Saturday 2 November 2019 at the Nottingham Belfry Hotel. Big Day is our chance to gather everyone in the TSC community
Today is Global TSC Awareness Day 2019, a landmark annual day for the entire TSC community. Louise Fish, Chief Executive Officer of the TSA, discusses how sharing individual stories about TSC can help push forward the global agenda on improving the lives of people affected
The TSA is excited to confirm that the Family Fun Day is back for 2019, taking place on Saturday 27 July and this year we are heading to Chester Zoo! The Family Fun Day is the perfect chance for families and children living with TSC
