Epilepsy Action Family Camp is a residential adventure weekend which takes place from Friday 31 August to Sunday 2 September 2018. It's a really exciting opportunity for young people with epilepsy, aged 8 to 18, and their families, to have a fantastic adventure in the
The TS Alliance organisation based in the United States of America, holds its World Conference every 4-5 years. This year's event is due to take place 26-29 July 2018 in Dallas, Texas.  http://www.tsalliance.org/2018-world-tsc-conference/ This year the TSA is offering funding for a member of the UK
Fantastic news from our friends in America! The Tuberous Sclerosis Alliance (TS Alliance) has announced that the U.S. Food and Drug Administration has approved the drug everolimus to treat partial-onset seizures in patients with tuberous sclerosis complex in America. You can read all about this
So London Marathon 2018 - what an incredible day! A huge #TeamTSA thank you to absolutely everyone who has supported us at this event in every way - and most of all to Kris Stafferton, Huw Knight, Graham Sale, Richard Vennard and Jamie Wareing who have more than done
Managing the family finances can be a challenge at the best of times and especially so when you are caring for children or young people with additional needs or disabilities. Contact - For Families with Disabled Children is calling on mums, dads and other family
Are you interested in helping shape TSC research and direct how the TSA funds research? If so; we are looking for an additional lay (community) member of our research committee (RESCOM). Please see the attached guide and form for how to apply.  {module_literature filter="item"
Tuesday May 15 is TSC Global Awareness Day, the day we hope as many people as possible in the TS community worldwide will join together to help raise awareness of this rare disease by talking about it, online and offline. To help you to do
May 15 is #TSGlobalDay, the day on which the international Tuberous Sclerosis Community shares information and their stories about TSC to raise awareness of this condition, which affects an estimated 1 million people worldwide. Here are 15 facts about TSC which give the basics about
At the TSA we try to give everyone who engages with us an experience where they feel valued and supported. This includes people living with TSC, their families and carers as well as all of our amazing fundraisers and volunteers.  We have therefore decided to
The TSA is really pleased to hear of such positive results from a recent trial of topical rapamycin for the treatment of facial angiofibromas. The study, which took place in America and Australia and more details of which you can find on the link below,
