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      • Meet your research committee
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    • TSA research
      • TSA-funded research
        • 2022 TANDem seed grant award round
      • TSC Research Volunteer Network
        • TS2000: Tracking TSC throughout life
        • BEE-PP project / BEE study
        • EDiTS study
        • CoIN study
        • The e-SNORE project
        • ACT in TSC trial
      • TSC research from other groups
      • Researchers in focus
    • TSC conferences
      • International TSC Research Conference 2021
        • ITSCRC 2021: Community recap
      • TSC Research Symposium 2020
  • Get involved
    • Our community events
      • Big Day 2025: Our biggest annual event
      • Outlook 2025: For adults mildly affected by TSC
      • TSA Together: Events by the TSC community, for the TSC community
      • TSA virtual and in-person events
    • Donate
      • Donate to the TSA
      • Regular Giving
      • Gift Aid
      • How your donations help
      • Corporate partnerships and giving
        • Give as you earn with payroll giving
        • Meet our corporate supporters
      • Give in remembrance or celebration
      • Leave a legacy
    • Fundraise
      • Fundraise for us
      • Challenge events
      • Fundraising resources
      • Ways to fundraise
      • TSA fundraising campaigns
        • Superhero Summer
        • TSA Dog Jog
        • Room to Breathe – Branching Out for the TSA
        • TSA Lottery
        • TCS London Marathon
      • Fundraising champions
    • Join the conversation
      • Join TSA Voices: Share views quickly and easily
      • Getting to know you: Our ongoing survey
      • Share your story or expertise
      • Community groups and other groups
  • About the TSA
    • Keep updated
      • Sign up to our e-newsletter and monthly magazine
      • News and campaigns
      • Sign up to receive TSA updates
    • About us
      • Mission and vision
      • Meet your team
      • History of the TSA
      • Annual reports
    • Contact us
      • Click here to talk to us
      • Update your information
  • Information & support
    • TSC Overview
      • What is TSC?
      • Diagnosis
      • TSC and genetics
      • Treatment and management
    • Get help and support
      • Contact the TSA Support Line
        • Meet the TSA Support Line Advisers
        • TSA Support Line feedback form
      • Carer information and support
      • How to be referred to an NHS TSC clinic
        • Find a local NHS TSC clinic
      • TSA video hub
      • Access benefits and financial aid
        • TSA Support Fund
    • How TSC affects the body
      • Physical effects
        • Epilepsy
        • Brain
        • Heart
        • Lungs
        • Skin
        • Eyes
        • Kidneys
        • Other areas
      • Wider effects (TAND)
        • Intellectual ability
        • TSC-Associated Neuropsychiatric Disorders (TAND)
        • Sleep problems
  • Life with TSC
    • Living with TSC
      • TSC stories
      • New diagnosis
      • Living well
      • Siblings
      • Education
      • Employment
      • Housing
      • Holiday and leisure
    • TSC at different life stages
      • TSC and family planning
      • When TSC is suspected or diagnosed during pregnancy
      • Early years and childhood
      • Adolescents and transition to adult life
      • Women’s health
      • Adult life
      • Planning for end of life
      • Bereavement
  • For professionals
    • Professionals
      • Healthcare professionals
        • UK TSC clinical guidelines
        • Personal Child Health Record (Red book)
        • Advice on medicines
      • Social care professionals
      • Education professionals
    • TSC conferences
      • International TSC Research Conference 2021
    • Educational materials
      • TSA professional training courses
      • BMJ learning modules
  • Research
    • How we deliver research
      • Research governance and policies
      • Research strategy
      • Meet your research committee
      • Common questions about our research
    • TSA research
      • TSA-funded research
        • 2022 TANDem seed grant award round
      • TSC Research Volunteer Network
        • TS2000: Tracking TSC throughout life
        • BEE-PP project / BEE study
        • EDiTS study
        • CoIN study
        • The e-SNORE project
        • ACT in TSC trial
      • TSC research from other groups
      • Researchers in focus
    • TSC conferences
      • International TSC Research Conference 2021
        • ITSCRC 2021: Community recap
      • TSC Research Symposium 2020
  • Get involved
    • Our community events
      • Big Day 2025: Our biggest annual event
      • Outlook 2025: For adults mildly affected by TSC
      • TSA Together: Events by the TSC community, for the TSC community
      • TSA virtual and in-person events
    • Donate
      • Donate to the TSA
      • Regular Giving
      • Gift Aid
      • How your donations help
      • Corporate partnerships and giving
        • Give as you earn with payroll giving
        • Meet our corporate supporters
      • Give in remembrance or celebration
      • Leave a legacy
    • Fundraise
      • Fundraise for us
      • Challenge events
      • Fundraising resources
      • Ways to fundraise
      • TSA fundraising campaigns
        • Superhero Summer
        • TSA Dog Jog
        • Room to Breathe – Branching Out for the TSA
        • TSA Lottery
        • TCS London Marathon
      • Fundraising champions
    • Join the conversation
      • Join TSA Voices: Share views quickly and easily
      • Getting to know you: Our ongoing survey
      • Share your story or expertise
      • Community groups and other groups
  • About the TSA
    • Keep updated
      • Sign up to our e-newsletter and monthly magazine
      • News and campaigns
      • Sign up to receive TSA updates
    • About us
      • Mission and vision
      • Meet your team
      • History of the TSA
      • Annual reports
    • Contact us
      • Click here to talk to us
      • Update your information
  • A Parent’s Guide to Improving the Well-Being of Young Children with Learning Disabilities

A Parent’s Guide to Improving the Well-Being of Young Children with Learning Disabilities

  A new guide for parents to help improve the well-being of young children with learning disabilities has been published by Professor Richard Hastings, of the University of Warwick. You can read it by clicking HERE. Professor Hastings and his team are keen to hear

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  • Cold weather – are you entitled to a cold weather payment from the Department of Work and Pensions?

Cold weather – are you entitled to a cold weather payment from the Department of Work and Pensions?

With much of the UK affected by snow and freezing temperatures this week if you are on a low income it is possible that you may be entitled to a cold weather payment. You can find out if you qualify for a cold weather payment

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  • NHS England public consultation on funding everolimus for TSC-related epilepsy in England

NHS England public consultation on funding everolimus for TSC-related epilepsy in England

  We are delighted to say that NHS England’s draft policy recommends funding the drug for patients aged two years or older with TSC-related seizures. The exact wording of the draft policy states that: “Everolimus may be given to patients aged two years and older

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  • TSC research pioneer Ann Hunt now in Oxford Dictionary of National Biography

TSC research pioneer Ann Hunt now in Oxford Dictionary of National Biography

Ann Hunt was one of the founder members of the Tuberous Sclerosis Association and a pioneer of research into TSC. Dr Chris Kingswood, one of the TSA's Trustees, and himself award-winning researcher into TSC, has written this moving and inspirational tribute to her which is

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  • Budding rock stars with TSC wanted!

Budding rock stars with TSC wanted!

Are you a budding rock star with TSC? Do you play in a band? And do you fancy recording a song for us? If you have answered 'yes' to these three questions, then please email sarah.roberts@tuberous-sclerosis.org with your name, age, address, phone number and details

Read More
  • Draft Autism (Wales) Bill – have your say

Draft Autism (Wales) Bill – have your say

Are you affected by TSC and autism and live in Wales? If so please take five to have your say on the Draft Autism (Wales) Bill. The Bill requires the Welsh Government to publish an autism strategy and guidance on how it should be used. Click

Read More
  • Epilepsy Action Family Camp – apply before Monday April 16

Epilepsy Action Family Camp – apply before Monday April 16

Epilepsy Action Family Camp is a residential adventure weekend which takes place from Friday 31 August to Sunday 2 September 2018.  It's a really exciting opportunity for young people with epilepsy, aged 8 to 18, and their families, to have a fantastic adventure in the

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  • Would you like to go to TS Alliance conference in Dallas this July?

Would you like to go to TS Alliance conference in Dallas this July?

The TS Alliance organisation based in the United States of America, holds its World Conference every 4-5 years. This year's event is due to take place 26-29 July 2018 in Dallas, Texas.   http://www.tsalliance.org/2018-world-tsc-conference/  This year the TSA is offering funding for a member of the UK

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  • Everolimus approved to treat partial-onset seizures in patients with TSC in America

Everolimus approved to treat partial-onset seizures in patients with TSC in America

Fantastic news from our friends in America! The Tuberous Sclerosis Alliance (TS Alliance) has announced that the U.S. Food and Drug Administration has approved the drug everolimus to treat partial-onset seizures in patients with tuberous sclerosis complex in America. You can read all about this

Read More
  • London Marathon 2018 #TeamTSA heroes

London Marathon 2018 #TeamTSA heroes

So London Marathon 2018 - what an incredible day! A huge #TeamTSA thank you to absolutely everyone who has supported us at this event in every way - and most of all to Kris Stafferton, Huw Knight, Graham Sale, Richard Vennard and Jamie Wareing who have more than done

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Pynes Hill,
Exeter,
EX2 5AZ

 

Support enquires:

0808 801 0700
support@tuberous-sclerosis.org

 

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0300 222 5737
Admin@tuberous-sclerosis.org

 

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