The deadline to enter our Outlook 20 Art Competition has now passed and we would like to say a massive thank you to everyone who has submitted a piece of art, photography or creative writing. All entries will be proudly displayed at our forthcoming Outlook weekend

It's Rare Disease Day on February 29th. Below you can see the official video, or visit their site HERE for more information Please support the fight for treatment in England In November 2014 we launched our Fight4Treatment campaign for access to Everolimus.  At the beginning

The European Patients Academy on Therapeutic Innovation (EUPATI) has launched a toolkit to provide information for anyone who is interested in learning more about the medicines research and development (R&D) process. The press release below describes the context and development of the toolkit. Additionally, you

A new report shows that many people with TS may not be receiving the right care and treatment. TSA Trustee Dr Chris Kingswood and our CEO Dr Jayne Spink are both amongst the authors of the report which you can read HERE Analysis of routine

SAVE THE DATE: 17th September 2016 Where: Nottingham Belfry, Mellors Way, Off Woodhouse Way, Nottigham, NG8 6PY Event details:             At this full day event you will have a chance to hear speakers giving updates on research and attend workshops

Rare Disease Day, 29th February 2016 We are expecting that NHS England will give their decision on whether the NHS in England will fund Everolimus for TSC patients with SEGA’s and AML in March.  We want the voices of people with TSC to be heard,

The NHS is now carrying out a consultation on the provision of Everolimus to treat SEGA tumours. It is very important that as many people as possible within the TSA community in the UK - people with TSC, family, carers, friends and colleagues - respond

  PEOPLE with Tuberous Sclerosis, their carers, friends and family are invited to attend a free meeting on Saturday, March 12 where they can find out more about their condition and the support which may be available to them. The venue is Hollymoor Centre, 8

TSC Awareness Week May 9 to 15 TSC Awareness Week 2016 is almost upon us and we’d love as many of you as possible to enjoy a Tea & SCones party during this week – raise some funds for us in the process and raise

Kelly Gibson of Dumfries is the latest winner of our £300 quarterly Janet Medcalf Award.  Kelly says: "We live in Dumfries and run two busy businesses.The Waterfront Takeaway is on the Whitesands and was completely flooded during Storm Frank last December. The water was 4