If you are having problems with finding travel or life insurance, please click here for Insurance information from the Genetic Alliance. The Genetic Alliance have found these insurers often have helpful policies for patients who have had difficulties with insurance: Travel: Insurancewith Life: AllClear The Genetic
Merseyside Support Group The group meets every other month at the Neuro-Support Centre in Liverpool. It provides support and information to those with Tuberous Sclerosis Complex and their carers in an informal setting. It’s a chance to get together with others and have a chat
In this double-blind, placebo-controlled, phase III trial patients ≥18 years with ≥1 angiomyolipoma ≥3 cm in its longest diameter (based on radiological assessment) and a definite diagnosis of TSC or sporadic lymphangioleiomyomatosis were randomised 2:1 using an interactive web response system to receive oral everolimus
Please note that the correct address for sending any fundraising cheques to the TSA is: Tuberous Sclerosis Association PO Box 4923 Sheffield S2 9EU We would be grateful if you could always ensure you write your own address (sender’s address) on the back of the
Sibs, the UK charity for siblings of disabled people, has launched the first ever UK wide online service for siblings of disabled children. YoungSibs will provide young siblings with much needed information and support whilst they are growing up with a disabled brother or sister.
The reason for this survey is to find out  what  people with TSC and their families think of  the TSA.  We  want  to  know whether  we are doing the right things.We  also  want  to  know whether  there  are  things  we  could  do  differently  or  better.
Having been closely involved with the project from inception, the TSA is delighted to report that the TESSTAL clinical trial of Sirolimus has been published in the academic press*. As a phase 2 trial, it was designed to investigate how effective and safe the drug
Votubia® (everolimus) Fact Sheet What is Votubia® (everolimus)? Votubia® (everolimus), is a prescription-only medicine for patients at least three years of age with subependymal giant cell astrocytoma (SEGA) associated with tuberous sclerosis complex (TSC) who require therapeutic intervention but are not amenable to surgery. Votubia
The Tuberous Sclerosis Association (TSA) is delighted that the drug Votubia® (Everolimus) was launched in the UK today, to provide a treatment option for people with Tuberous Sclerosis Complex (TSC) who have growing non-malignant brain tumours which are not suitable for removal by surgery. Everolimus, which
Posted on 10th January, 2010 With your help, the possibility of a cure is closer than ever. As TSC is a significant genetic cause of epilepsy and autism, every pound raised to find a cure and better treatments for Tuberous Sclerosis Complex can also mean a
