Hearing the words Tuberous Sclerosis Complex for the first time is a life-changing moment for families all across the UK every day. But, the TSA is here for everyone in the TSC community on this journey. For the TSA Spring 2024 Appeal, we’re
Sunday 11 February marked International Day of Women and Girls in Science, a chance to celebrate the immense contributions of women and girls within the scientific community.   The TSA works very closely with many women across the world in TSC medicine and research. We’ll
Cannabidiol (brand name Epidyolex) is an important medicine option for people with hard to treat seizures associated with TSC. The journey of this and other treatments is the result of lots of hard work - especially for TSC researchers Those involved in Epidyolex included
It is with great sadness that the TSA must announce the passing of Tom Carter, TSA Trustee and Lifetime President, following a short illness Tom was a vital member of the TSA team, from the charity's early years right through to the present day.
The TSA is proud of our position as a leader in global TSC research. However, research can only happen thanks to amazing people in the TSC community taking part There are currently lots of new opportunities to get involved in TSC research. To make
It’s important to prepare for the move from child to adult care services, as it can pose many obstacles Child services involves familiar and highly-structured care. The transition from this to adult services, which are more self-directed and independent, can be daunting. However, it
The nights are getting longer and there's a frost in the air - it's definitely coming up to the festive season! As part of this, we're delighted to confirm that the TSA's festive cards and goodies for 2023 are now on sale!
The first ever official international recommendations on the diagnosis and treatment of TAND were recently published. This is an important milestone in TSC-Associated Neuropsychiatric Disorders, but what will the recommendations actually mean for people with TAND? Published in Journal of Neurodevelopmental Disorders, the international
The TSA is proud to be a significant funder to TSC research around the world. We recently partnered with Epilepsy Research Institute UK to unlock completely new TSC research. The lead researcher of the project, Dr Amanda Almacellas Barbanoj, tells us all about her
An exciting new project has been launched to better understand different challenges in rare diseases. Led by Kings College London, researchers will focus on the rare diseases that are connected to part of the body called the 'mTOR pathway'. The TSA is proud to
