Bella, right, with her sister Marina We know that the TSC community is full of creative individuals and groups, all working on different passions that are close to them. It's time that we begin to celebrate it! In this new series of

The Cardiff TSC Clinic team has submitted an important application to the Welsh Health Specialised Services Committee (WHSCC) to help ensure that the clinic has a strong financial future. ➡ To make sure that WHSCC listens, we need YOUR help! ⬅ If

Our understanding of TSC continues to improve only because of the efforts of everyone in the TSC community, including TSC researchers. Dr Charlotte Tye (Kings College London) is a TSC researcher, and took some time to tell us about life as a researcher, her

Everyone at the TSA was very saddened to hear of the passing of Olive Lindsell on Saturday 1 August. Olive - a much loved mother to Peter, Joanna and Susie, and wife to Tony - was a pioneer in bringing the TSC community together and

The global covid-19 pandemic has had a significant impact on the TSA’s immediate priorities, in particular on our finances. Now that we are over the first wave of the pandemic, our Board of Trustees has made further difficult decisions to ensure the long-term future

Louise Fish (Chief Executive) recently shared an update on team changes at the TSA following the financial impact of the coronavirus pandemic. Here, Louise offers further information about how the TSA is adapting so that we can provide the best possible support for the

Dr Shelagh Joss is a Consultant Clinical Geneticist with a longstanding interest in TSC. Having moved to Glasgow 10 years ago, Dr Joss founded the Glasgow NHS TSC Clinic, where she is the Clinic Lead. During the Scottish Get Together 2020, Dr Joss was

As Summer comes to an end and we welcome in Autumn, many people will be thinking about getting their annual flu jabs in anticipation of 'flu season' over Winter. This includes a high proportion of the TSC community, many of whom may fall into

In the current global situation, it is understandable to have concerns about how covid-19 may impact on a loved one’s stay in a residential home. This is especially true for those in the TSC community, and has been an emerging issue for some people

As new lockdown restrictions are introduced into England, guidance for the nation has been updated for the 'clinically extremely vulnerable'. A small number of people in the TSC community fall into this category. Those identified as 'clinically extremely vulnerable' will receive a letter that