Would you like to share your TSC research story? We are looking for people who have taken part in research into TSC who are willing to share their experiences about this - either on video or in writing - with us to mark Rare Disease
The TSA is delighted to announce that Maxine Smeaton is now in post as Interim CEO of the Tuberous Sclerosis Association. Maxine, former CEO of renowned medical research charity Blond McIndoe, will be leading the TSA for the next 12 months while CEO Louise Fish
 As this year draws to a close we'd just like to say a huge thank you to everyone who has supported the TSA in all aspects of our work throughout 2017.    It has been a momentous year for us with highlights
 NHS England and the Local Government Association have been working to understand the many additional barriers faced by children, young people and adults with a learning disability, autism or both and their families in raising concerns and complaints. They want to take practical steps
Just a brief message from all at the TSA to wish all our supporters and the TS community, once again, a very Happy New Year and to let you know that our festive close down period has now ended and we are back to our
 The TSA is incredibly sad to hear the news, over the weekend of January 13/14 2018, that TAND researcher Loren Leclezio has passed away.  Working with Petrus de Vries at the University of Cape Town, Loren was funded by the TSA to undertake
Our Fundraising Team are busy planning our 2018 Tea & SCones for TSC appeal, and we would like you to go to your employer, school or club and ask them to put a date in their diary when they will hold their event between May
As you may be aware, there are new government regulations coming into place regarding the way companies and charities store and manage individuals personal information, such as your name and contact details. At TSA we welcome these changes. You may have heard about them already
This year we have five amazing people running for us in the Virgin London Marathon 2018 and they are as follows: Â Jamie Wareing - Jamie from Preston, works for Preston City Council, and is running for #TeamTSA because his daughter Elsie, 2, has TSC.Â
We have submitted feedback to NICE on the draft policy document regarding Everolimus for Epilepsy and the integrated impact assessment. Our CEO Maxine Smeaton has this week received notice that the Scottish Medicines Council is also about to open its consultation, and the TSA will
