Are you under 16 years old and either have TSC or have someone in your family with TSC? Then why not grab your art gear, get creative and enter our Christmas card design competition? If you win, not only will you feature in our Christmas

NHS England devastating U-turn on drug treatment for brain tumours Last year NHS England promised to develop an in year policy for the use of Everolimus to treat SEGA (brain TSC related tumours). This month, NHS England broke that promise and is saying this drug

Here is the text in full of the letter published in today's The Times newspaper, in which NHS consultants express their shock and disappointment at NHS England's recent decision regarding the provision of Everolimus for inoperable SEGA tumours. Please take a few minutes to read

  Today we are absolutely delighted to be able to announce the winner of this year’s children’s design a Christmas card competition... and it is four-and-a-half year old talented artist and big sister extraordinaire Ava Morgan, who lives in Bingley, Yorkshire. Ava's Mum Amy explains:

NEWSFLASH Our #Fight4Treatment has made The Daily Express newspaper today with an compelling interview with Samantha-Jayne Harding, mum of Toby-Jay, who has TSC, of Westcliff. If you would like to sign our e-petition then please click here.

  We are thrilled to be able to tell you that this year we are fielding our biggest number of runners ever to tackle the iconic Great North Run for us on Sunday, September 11. Here is a list of all our 17 Great North runners,

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Our #Fight4Treatment campaign has also been featured on BBC Radio York this morning. You can find out more, and listen to the radio report, here: http://www.bbc.co.uk/news/live/uk-england-york-north-yorkshire-37610513

Our #Fight4Treatment was featured on page 62 of the Mail on Sunday, October 9 - you can read it on the link here. http://www.dailymail.co.uk/health/article-3828549/NHS-accused-abandoning-children-life-threatening-disease-refusing-funds-breakthrough-drug-not-currently-affordable.html            

Julian Sturdy MP Leads Cross Party Group of MPs Lobbying NHS England Over Much-Needed Everolimus Drug A cross-party group of MPs, led by Julian and Greg Mulholland, have written to NHS Chief Executive Simon Stevens urging him to make the Everolimus drug available to those