TSA Together meetings are face-to-face and virtual gatherings organised and led by the community itself, focused on a local area or a specific topic
TSC Together gives you the power to organise and be part of events that are either happening locally to you, or are focused on a specific topic.
Your TSC Together meeting can be whatever you want, wherever you want (as long as you have permission from the venue). You might decide to do something like a meetup for people in your local area, or an online meeting focused on a specific topic. Perhaps you’d like to start a TSC bookclub, or parenting group?
You might also want to make your TSC Together group meeting a closed group, such as one for your loved ones or colleagues only. This would give you a way to tell people close to you more about TSC, so they can better understand the condition better.
You can organise the events that work best for you. Whether it’s a short 30 minute online catchup, a large-scale face-to-face meeting that lasts all day, or anything in-between. It’s also a great way to fundraise, allowing the TSA to continue to be here.
Whatever sort of TSA Together event you decide to host, the TSA will be here to support you every step of the way!
Register your event, telling us things like where it’ll be and if there’s a theme or focus
Think how you might fundraise as part of your event, like setting up a fundraising page
We’ll tell people about your event and how to register, and pass their details to you
Host your event and be better connected with others in the TSC community
Important information
The TSA does not directly run TSA Together group meetings. TSA Together is intended as a central platform for the TSC community to connect in a peer-to-peer setting.
The TSA is not responsible for any content, advice or support provided by TSA Together group meetings. While every effort is made to ensure that those hosting TSA Together groups are suitable to do so, by attending a TSA Together event you understand that the event itself, attendees and any subsequent next steps are the sole result of the third-party individual who organised the event.
The TSA requires all TSA Together group meeting organisers to sign a TSA Volunteer Agreement. This form commits event organisers to adhere to regulatory standards and requirements as set out by the TSA. If any group organiser is found in breach of these expectations the TSA may choose to end this agreement.
We strongly suggest that you contact TSA Together group organisers directly to find out more about their event. Community peer support groups can quickly change their status and it’s possible that a meeting listed is no longer running or has changed its format.
Please contact support@tuberous-sclerosis.org with any questions, or if you have attended a TSA Together meeting and have positive feedback or concerns to share with us.
Make a one off or regular donation
£10 Can allow us to send a welcome pack to a family who has just received a life-changing TSC diagnosis, ensuring that they do not go through this time alone.
£25 Can help us develop materials that are included in our support services, flagship events or campaigns.
£50 Can provide laboratory equipment for a day’s research into the causes, symptoms, management or treatment of TSC.
To provide help for today and a cure for tomorrow