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Register your TSA Together event

This page lists all upcoming TSA Together group meetings – special meetings that are organised by the TSC community, for the TSC community

TSA Together meetings can be focused on anything, and can be face-to-face or virtual. Perhaps a one-off meeting to find other people in your local area affected by TSC, or a monthly online bookclub? More information about TSA Together can be found here.

TSA Together is currently in its pilot form, which means that there might be fewer events listed here than usual. Be sure to fill in our registration form if you’d like to include your own TSC Together meeting here!

Upcoming TSA Together group meetings

There are currently no upcoming TSA Together group meetings planned, but be sure to regularly check this page or think about even registering your own!

Important information

The TSA does not directly run TSA Together group meetings. TSA Together is intended as a central platform for the TSC community to connect in a peer-to-peer setting.

The TSA is not responsible for any content, advice or support provided by TSA Together group meetings. While every effort is made to ensure that those hosting TSA Together groups are suitable to do so, by attending a TSA Together event you understand that the event itself, attendees and any subsequent next steps are the sole result of the third-party individual who organised the event.

The TSA requires all TSA Together group meeting organisers to sign a TSA Volunteer Agreement. This form commits event organisers to adhere to regulatory standards and requirements as set out by the TSA. If any group organiser is found in breach of these expectations the TSA may choose to end this agreement.

We strongly suggest that you contact TSA Together group organisers directly to find out more about their event. Community peer support groups can quickly change their status and it’s possible that a meeting listed is no longer running or has changed its format.

Please contact support@tuberous-sclerosis.org with any questions, or if you have attended a TSA Together meeting and have positive feedback or concerns to share with us.

Make a one off or regular  donation

£10 Can allow us to send a welcome pack to a family who has just received a life-changing TSC diagnosis, ensuring that they do not go through this time alone.

£25 Can help us develop materials that are included in our support services, flagship events or campaigns.

£50 Can provide laboratory equipment for a day’s research into the causes, symptoms, management or treatment of TSC.

To provide help for today and a cure for tomorrow