Everolimus (trade name Votubia®) has been approved by the regulators for use in the European Union as a treatment for refractory partial-onset seizures in children (aged 2 years and older) and adults with TSC.The term “refractory” refers to seizures that have stopped responding to other
Today we'd like to introduce to you our amazing London Marathon #TeamTSA. Please take a few moments to click on each of their names to read their full stories and to support them with their fantastic efforts as fully as you can, whether that means
Our first ever CEO, Dr Jayne Spink, will be stepping down in April after 5 years with the TSA. Since Jayne joined the TSA we have seen an unparalleled period of growth and expansion, and we would like to offer her our grateful thanks for
The Observer newspaper has run an article on a letter signed by 30 members of the Specialised Healthcare Alliance (SHCA) including the Tuberous Sclerosis Association calling on the Prime Minister Theresa May to address NHS underfunding to tackle the rationing of treatment. Responding to the
We were recently joined by nine employees from top fashion label White Stuff who gave up a day of their time to volunteer for us. The nine - Nick Bradley, Nicola Pollard, Marcel Byfield, Morad Lamaani, Louise Kither, Lauren Husbands, Denise O'Donnell, Fatima Badri and
This year’s Rare Disease Day focus is research. Today, February 28, patient organisations are busy highlighting so much of the fantastic research currently being undertaken to better understand a whole range of rare diseases. We are using this spotlight to share the work of some of those undertaking research into TSC. The
