Failure of the NHS to fund access to medicines to treat rare conditions such as Tuberous Sclerosis is a major ongoing issue.   Today the Genetic Alliance UK have launched a landmark Patient Charter that highlights the concerns patients have about the new approach the

The National Institute for Health and Care Excellence (NICE) is seeking members for a guideline development group that will be tasked to produce a social care guideline on transition from children’s to adults’ services.  NICE will be recruiting four people with experience of using services,

Cochrane UK and the Critical Appraisal Skills Programme (CASP) have just announced a series of free workshops which may be of interest to those associated with the TSA, in particular those interested in TSC research. The workshops look at using critical appraisal skills to systematically assess and

Sunday 13th April saw 9 runners take part in the London Marathon. We are so proud of all our participants. Here are our runners, their finish times, the funds they've raised already and links to their fundraising pages if they want to support them: Stewart