The nights are getting longer and there's a frost in the air - it's definitely coming up to the festive season! As part of this, we're delighted to confirm that the TSA's festive cards and goodies for 2025 are now on sale!

Lucas Gutiérrez Lafrentz is a PhD researcher at the Vrije Universiteit Brussel and University of Antwerp in Belgium. His work forms part of the TANDem 2 project, and aims to explore the ethical dimensions of care for individuals with TSC Associated Neuropsychiatric Disorders (TAND).

For people living with TSC, healthy relationships with other people, including a partner, a friend, or family member, can be a huge source of support. But, challenges from TSC might bring extra challenges to these relationships It’s important that every relationship is built on

Please note: This article discusses bereavement and suicide and may bring up difficult feelings. If you need support or a listening ear, please contact the TSA Support Line. If you If you think you need urgent crisis support, we want you to get the

Dr Claire Behan (St James' Hospital Dublin) is a TSC researcher involved in our most recent grant round (see here). We asked Claire to provide more information about her research, which is asking whether a "leaky" blood-brain barrier is the reason behind seizures and

Amanda Barbanoj (Senior Research Fellow, University College London) recently undertook a secondment working with the TSA's research team, where she carried out a project to understand how the TSA’s Research Involvement Network can better support the needs of the TSC community What is your

A new review brings together evidence on how ketogenic diets help to reduce seizures, while also highlighting existing knowledge gaps in the area A ketogenic diet is a high-fat, low-carbohydrate diet that encourages the body to use fats, rather than sugars, as its main

We are excited to announce the launch of RARE TSC (The National Registry for Advancing Research and Engagement in Tuberous Sclerosis Complex). This project aims to develop the UK’s first national research database specifically for TSC, holding medical and health records for every person

The UK Government has published new plans to reform support for children and young people with special educational needs and disabilities (SEND) in England. The plans include potentially major changes to Education, Health and Care Plans (EHCPs) Set to be implemented from 2029 onwards,

The TSA’s Joint Chief Executive, Dr Pooja Takhar, attended the Rare Disease Day 2026 Parliamentary Reception at the House of Commons, bringing together policy makers, charity leaders, healthcare professionals, pharmaceutical companies and members of the rare disease community The event was hosted by Peter