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We’re asking you to fill out the TSCensus – a way to help us understand who we’re supporting, and how you wish for the TSA to keep in touch with you.

We want EVERYONE in the TSC community to take a few minutes to complete the TSCensus. Whether you’re a long-time supporter, a newly diagnosed family, or fall into any other category, we’d love to hear from each and every one of you!

TSCensus is also your chance to tell us what we’re getting right and what we can do better. By telling us this, you’ll help us focus on what matters most to people living with TSC and their families in 2022 and beyond.

For more information on the individual questions  we are capturing and how it will be used please click here.

The TSCensus has now closed.

If you would still like to be included or wish to update your details with the TSA please give us a call on 0300 222 5737. Thank you.

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Make a one off or regular  donation

£10 Can allow us to send a welcome pack to a family who has just received a life-changing TSC diagnosis, ensuring that they do not go through this time alone.

£25 Can help us develop materials that are included in our support services, flagship events or campaigns.

£50 Can provide laboratory equipment for a day’s research into the causes, symptoms, management or treatment of TSC.

To provide help for today and a cure for tomorrow