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Welsh Info Day virtual meeting 2020

Saturday 6 June 2020, 1pm – 3:30pm

Do you live in Wales and are affected by Tuberous Sclerosis Complex (TSC)? The Welsh Info Day is for you!

The Welsh Info Day is an opportunity for Wales-based members of the TSC community – including people living with the condition, their family and carers – to make new friends and catch up with familiar faces, whilst taking part in a range of informative presentations and interactive sessions focused on key topics around TSC and living in Wales.

Despite the coronavirus outbreak, we’re determined to make sure that the TSC community can come together. That’s why this year’s Welsh Info Day will be virtual! Join us on Saturday 6 June via web conferencing platform Zoom for a great day.

Further information about the Welsh Info Day virtual meeting 2020, including ticket registration and an agenda, will be provided as soon as possible.

Previous speakers at the Welsh Info Day have included:

  • Wales Gene Park
  • Mencap Cymru
  • Genetic Alliance UK
  • Cardiff NHS TSC clinic

Help us organise the Welsh Info Day!

We are always looking for ideas and advice from the TSC community on how to shape all of our events, including the Welsh Info Day. If you have any suggestions, be sure to let us know by contacting comms@tuberous-sclerosis.org.

What happens at the Welsh Info Day?

At the Welsh Info Day you can expect to:

  • Have the opportunity to meet and get to know your fellow TSC community in Wales, including individuals living with the condition and their families and loved ones
  • Take parts on talks and workshops all focused on TSC and living in Wales
  • Talk with the Tuberous Sclerosis Association (TSA) about what we have been up to and our upcoming plans
  • Hear from external Wales-organisations about a range of different topics all focused around TSC

Make a one off or regular  donation

£10 Means that we can send a support pack to a family who has just received a life-changing TSC diagnosis, ensuring that they do not go through this time alone.

£25 Can help us develop materials that are included in our support services, flagship events or campaigns.

£50 Can provide laboratory equipment for a day’s research into the causes, symptoms, management or treatment of TSC.

To provide help for today and a cure for tomorrow.