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Do you live in Northern Ireland and you or someone close to you is affected by Tuberous Sclerosis Complex (TSC)? Then come along to the Northern Ireland Get Together 2020!

The Northern Ireland Get Together 2020 will take place virtually on Saturday 12 September, 1pm – 3pm. Registration is FREE and now open!

Come along to hear from the TSA team, meet your fellow Northern Ireland TSC community and to discuss topics important to you. The event will also feature a special Q&A session with the Belfast TSC Clinic.

Northern Ireland Get Together 2020 virtual meeting agenda

  • 13:00 – 13:10. Welcome and introductions, housekeeping
  • 13:10 – 13:30. An overview of the TSA Support Line (Luke Langlands – Head of Communications and Support)
  • 13:30 – 14:00. Covid-19 and the Northern Ireland TSC Community: Survey results (Rachel Hardy – Belfast Trust and Dr Deirdre Donnelly – Belfast TSC Clinic)
  • 14:00 – 14:05. Break
  • 14:05 – 14:55. Q&A with the Belfast TSC Clinic
  • 14:55 – 15:00. Thank you and close

Click here to register your place at the Northern Ireland Get Together 2020 virtual meeting

Help us organise Northern Ireland events!

We are always looking for ideas and advice from the TSC community on how to shape all of our events, including those in Northern Ireland. If you have any suggestions, be sure to let us know by contacting comms@tuberous-sclerosis.org.

Previous speakers at the Northern Ireland Get Together include:

  • Prof Petrus de Vries (Professor of Child and Adolescent Psychiatry, University of Cape Town, South Africa)
  • Rachel Hardy (Genetic Counsellor, Belfast Trust
  • Genetic Alliance UK
  • Fiona O’Donnell (Community Support & Information Officer, The Special Educational Needs Advice Centre)

Make a one off or regular  donation

£10 Means that we can send a support pack to a family who has just received a life-changing TSC diagnosis, ensuring that they do not go through this time alone.

£25 Can help us develop materials that are included in our support services, flagship events or campaigns.

£50 Can provide laboratory equipment for a day’s research into the causes, symptoms, management or treatment of TSC.

To provide help for today and a cure for tomorrow