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Big Day

Big Day is the biggest Tuberous Sclerosis Association event of the year, with the entire Tuberous Sclerosis Complex community invited

Big Day is the Tuberous Sclerosis Association’s (TSA) biggest event of the year!

Everyone in the TSC community is invited to come together at Big Day – from people living with TSC and their loved ones to clinicians and academics – to share experiences, get to know each other and hear about all-things TSC.

Big Day 2019 will take place at the Nottingham Belfry Hotel on Saturday 2 November! More information on Big Day 2019, including how to book your tickets, can be found below.

What happens at Big Day?

At Big Day you can expect to:

  • Be in an environment where people understand the impact that TSC can have on lives, with significant time allowed for networking
  • Discuss a range of topics, all focused on TSC, from external experts based around the UK
  • Have the opportunity to meet and get to know individuals and families affected by TSC
  • Take part in different workshops and talks, all specially designed to help the TSC community understand and access support, services and care

DATE:
Saturday 2 November 2019

TIME:
10am – 5pm

WHERE:
Nottingham Belfry, Mellors Way, Nottingham, NG8 6PY

CONTACT DETAILS:
comms@tuberous-sclerosis.org

Help us organise Big Day!

We are always looking for ideas and advice from the TSC community on how to shape all of our events, including Big Day. If you have any suggestions, be sure to let us know by contacting comms@tuberous-sclerosis.org.

Big Day 2019: Everything you need to know

When and where is Big Day 2019?

Big Day 2019 is taking place Saturday 2 November at the Nottingham Belfry Hotel, 10am – 5pm.

Nottingham is a driving force in TSC research, with the UK’s only specialist LAM clinic forming part of the Nottingham TSC clinic. We are delighted to have Professor Simon Johnson (Respiratory Medicine, University of Nottingham) at Big Day 2019, to give us an overview of the fantastic work taking place at the LAM clinic.

How do I book tickets to Big Day 2019 and is there a creche?

Tickets for Big Day 2019 can be ordered via Eventbrite here until 12:00pm on Thursday 31 October. We are pleased to confirm that we will have a creche for Big Day 2019 for children aged under 16. The creche will be hosted again by the fantastic Toy Library, who have been an asset at previous Big Day events.

Attendees who would like to use the creche are asked for a £15 deposit per child for use of the creche. The £15 will be reimbursed back to you following Big Day providing that you attend the day. Those who would like to use the creche facilities must register this as part of their booking.

Anyone who requires financial support to attend Big Day 2019 should contact Rachael Wyartt (Head of Support and Information Services) to discuss access to the TSA’s support fund: Rachael.Wyartt@tuberous-sclerosis.org / 0300 222 5737.

What is the Big Day 2019 agenda?

This year’s Big Day is the biggest yet! We have worked very hard to offer you a full, rich and worthwhile programme designed with the TSC community in mind. Confirmed speakers include:

Anyone who requires financial support to attend Big Day 2019 should contact Rachael Wyartt (Head of Support and Information Services) to discuss access to the TSA’s support fund: Rachael.Wyartt@tuberous-sclerosis.org / 0300 222 5737.

What accommodation is available?

The TSA were able to secure discounted rooms at the Nottingham Belfry Hotel for the night prior to Big Day 2019. The deadline discounted rooms at the Nottingham Belfry has now passed.

To book a room at the Nottingham Belfry, please their central reservations number on: 0115 973 9393 and state that you are attending the TSA event. Please note these rooms need to be paid for in advance and are non-refundable.

As well as the Nottingham Belfry itself, there is a wide range of accommodation nearby and in Nottingham itself. This includes the DoubleTree by Hilton and Premier Inn Nottingham West.

I still have further questions

If you have any questions, ideas or feedback about Big Day 2019 (or Big Day in general), we would love to hear from you! Please contact us at comms@tuberous-sclerosis.org / 0300 222 5737.

Make a one off or regular  donation

£10 Means that we can send a support pack to a family who has just received a life-changing TSC diagnosis, ensuring that they do not go through this time alone.

£25 Can help us develop materials that are included in our support services, flagship events or campaigns.

£50 Can provide laboratory equipment for a day’s research into the causes, symptoms, management or treatment of TSC.

To provide help for today and a cure for tomorrow.