Virtual event: The importance of sleep in children with TSC

Do you want to know about the impact of sleep on wellbeing, behaviour and managing TSC in children living with the condition? Join us for this live session, where sleep experts Dr Stacey Bissell (Research Fellow, University of Birmingham), Dr Caroline Richards (Senior Lecturer,

Free

Great North Run 2021

Newcastle

For information on running the Great North Run in 2021 for the TSA please contact the team on Fundraising@tuberous-sclerosis.org

Scottish 10K

Musselburgh Racecourse

The route starts and finishes just outside Edinburgh at Musselburgh Racecourse. The Scottish 10K route is seriously fast and flat! You’ll run out and back along the magnificent Golf Coast before finishing in the final furlong at Musselburgh Racecourse; Scotland’s oldest racecourse. To secure

Virtual event: TSC and its impact on skin

Virtual event: TSC and its impact on Skin In this virtual event, we welcome Dr Lea Solman (Consultant in Paediatric Dermatology, Great Ormond Street Hospital) to discuss all-things skin-related in the world of TSC. Skin and dermatology issues are some of the most significant

Free

Virtual event: Introduction to supporting siblings

Do you want to find out more about supporting siblings whose brothers or sisters live with TSC? The TSA is delighted to host 'Introduction to supporting siblings', a special virtual workshop organised in partnership with siblings charity, Sibs. Presented by Sibs, this workshop is

Free

TSA Annual General Meeting 2021

The TSA's Annual General Meeting (AGM) 2021 will take place Thursday 18 November, 7pm - 8pm. The AGM will take place virtually, via a video conferencing platform. The AGM is a great opportunity to hear from the TSA and to make sure that we understand

Free

Virtual event: TSC and lymphangioleiomyomatosis (LAM)

Virtual event: TSC and lymphangioleiomyomatosis (LAM). Around three in every 10 women who live with TSC, and a very small number of males, also develop complications in the lungs, called ‘lymphangioleiomyomatosis’ (or ‘LAM’). The impact and severity that LAM can have on a person

Free

Cardiff TSC Clinic update 2021

Do you live in Wales and are affected by TSC? Join us for an important annual update from the Cardiff NHS TSC Clinic On Wednesday 8 December, 6pm - 7pm, the TSA welcomes Dr Jenny Gardener (Consultant Clinical Geneticist), Dr Anurag Saxena (Consultant Paediatric

Free

Virtual Outlook festive special 2021

Grab a minced pie, a cracker and your winter jumper - Outlook is going festive once more!Last year, Outlook - a special community for adults mildly affected by TSC - held a virtual festive special for the first time. The event went so well, that

Free