News and events
The latest announcements and news from the Tuberous Sclerosis Association
Tips for a TSC-friendly Easter
Easter can be full of fun activities and a
Getting started with Disability Living Allowance (DLA)
We've recently received lots of enquiries on the TSA
Proposed reforms to Personal Independence Payment (PIP)
The UK Government has confirmed new plans to reform
England Rare Diseases Action Plan 2025: What are the new priorities?
On the 28 February, the Department of Health and
Decision-makers in England agree to fund Fintepla for TSC-related condition Lennox-Gastaut Syndrome
The National Institute of Health and Social Care Excellence
‘Room to Breathe’ garden in aid of the TSA at RHS Chelsea Flower Show
A garden in aid of the TSA will be
Scotland approves funding medicine for TSC-related condition, Lennox-Gastaut Syndrome
Scottish decision-makers have announced that fenfluramine (brand name Fintepla,
Scotland says ‘Yes’ to Hyftor for facial angiofibromas!
Decision-makers in Scotland have agreed to fund Hyftor (topical
New research shows link between seizure impact and brain development
Professor Darcy Krueger and the TACERN Study Group has
Big Give Christmas Challenge 2024 is live!
From now until 10 December, all donations made to
TSA AGM 2024: What we’ve achieved and looking forward (available to watch now)
This week we held our Annual General Meeting 2024,
Your new issue of Scan is here!
We're delighted to confirm that the latest issue of