News and events
The latest announcements and news from the Tuberous Sclerosis Association
Planning a holiday with TSC
As we reach the summer months, many people in
New NHS England 10-Year Plan: What it means for the TSC community
NHS England recently unveiled its 10-Year Health Plan. This
Diagnostic overshadowing: What it is, how to recognise it, and what to do about it
If you or someone you care for has Tuberous
Tips for a TSC-friendly Easter
Easter can be full of fun activities and a
Getting started with Disability Living Allowance (DLA)
We've recently received lots of enquiries on the TSA
Proposed reforms to Personal Independence Payment (PIP)
The UK Government has confirmed new plans to reform
England Rare Diseases Action Plan 2025: What are the new priorities?
On the 28 February, the Department of Health and
Decision-makers in England agree to fund Fintepla for TSC-related condition Lennox-Gastaut Syndrome
The National Institute of Health and Social Care Excellence
‘Room to Breathe’ garden in aid of the TSA at RHS Chelsea Flower Show
A garden in aid of the TSA will be
Scotland approves funding medicine for TSC-related condition, Lennox-Gastaut Syndrome
Scottish decision-makers have announced that fenfluramine (brand name Fintepla,
Scotland says ‘Yes’ to Hyftor for facial angiofibromas!
Decision-makers in Scotland have agreed to fund Hyftor (topical
New research shows link between seizure impact and brain development
Professor Darcy Krueger and the TACERN Study Group has