The TSA has received lots of questions from families with children who live TSC, about covid-19 vaccinations for children aged under 16 years old . With the vaccination roll-out well underway, this is understandably a very confusing time for some families. Those talking to

GW Pharmaceuticals has confirmed that the European Commission (EC) has approved Epidyolex® (cannabidiol) as an adjunctive treatment for TSC-related epilepsy in people aged two years and older. The approval marks an important stepping stone in the journey towards the eventual approval and access to

The All Wales Medicines Strategy Group  (AWMSG) - who advise Welsh Government about the use, management and prescribing of medicines in Wales - is considering whether to recommend Votubia® (everolimus) for treatment of TSC-associated epilepsy. We need YOUR help to show AWMSG the impact

The TSA is delighted to confirm that the University Hospital of Wales Cardiff will receive long-term funding for their NHS TSC Clinic, following an application to the Welsh Health Specialised Services Committee (WHSSC). The Cardiff TSC Clinic is vital to many of the TSC

This survey has now ended - thank you to everyone who participated A new survey organised by a research consultancy, on behalf of a pharmaceutical company, is looking to better understand the impact of TSC on caregivers of people living with the condition and

The TSA recently updated our range of covid-19 information pages on our website and on the TSA Support Line. This is following an update from the Joint Commission on Vaccines and Immunisation (JCVI) on their guidance around vaccinations of children aged 12 and over.

The annual International TSC Research Conference is a very important event for the TSC research community, giving TSC researchers and clinicians from around the world the opportunity to share their latest discoveries and plan new collaborations. The TSA was delighted to host this year’s

International guidance for the diagnosis and management of Tuberous Sclerosis Complex (TSC) has been updated. The refreshed guidance now gives a greater focus on early surveillance, TSC-Associated Neuropsychiatric Disorders (TAND) and new treatments recently approved internationally for TSC. The need to update international guidance

The road to understanding how TSC affects you or a loved one following a diagnosis can be confusing, frustrating and very difficult. The TSA is here for everyone at all stages of their TSC journey - including the opening days, weeks and months -