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  • Information & support
    • TSC Overview
      • What is TSC?
      • Diagnosis
      • TSC and genetics
      • Treatment and management
    • Get help and support
      • Contact the TSA Support Line
        • Meet the TSA Support Line Advisers
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      • Carer information and support
      • How to be referred to an NHS TSC clinic
        • Find a local NHS TSC clinic
      • TSA video hub
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    • How TSC affects the body
      • Physical effects
        • Epilepsy
        • Brain
        • Heart
        • Lungs
        • Skin
        • Eyes
        • Kidneys
        • Other areas
      • Wider effects (TAND)
        • Intellectual ability
        • TSC-Associated Neuropsychiatric Disorders (TAND)
        • Sleep problems
  • Life with TSC
    • Living with TSC
      • TSC stories
      • New diagnosis
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      • Holiday and leisure
    • TSC at different life stages
      • TSC and family planning
      • When TSC is suspected or diagnosed during pregnancy
      • Early years and childhood
      • Adolescents and transition to adult life
      • Women’s health
      • Adult life
      • Planning for end of life
      • Bereavement
  • For professionals
    • Professionals
      • Healthcare professionals
        • UK TSC clinical guidelines
        • Personal Child Health Record (Red book)
        • Advice on medicines
      • Social care professionals
      • Education professionals
    • TSC conferences
      • International TSC Research Conference 2021
    • Educational materials
      • TSA professional training courses
      • BMJ learning modules
  • Research
    • How we deliver research
      • Research governance and policies
      • Research strategy
      • Meet your research committee
      • Common questions about our research
    • TSA research
      • TSA-funded research
        • 2022 TANDem seed grant award round
      • TSC Research Volunteer Network
        • TS2000: Tracking TSC throughout life
        • BEE-PP project / BEE study
        • EDiTS study
        • CoIN study
        • The e-SNORE project
        • ACT in TSC trial
      • TSC research from other groups
      • Researchers in focus
    • TSC conferences
      • International TSC Research Conference 2021
        • ITSCRC 2021: Community recap
      • TSC Research Symposium 2020
  • Get involved
    • Our community events
      • Big Day 2025: Our biggest annual event
      • Outlook 2025: For adults mildly affected by TSC
      • TSA Together: Events by the TSC community, for the TSC community
      • TSA virtual and in-person events
    • Donate
      • Donate to the TSA
      • Regular Giving
      • Gift Aid
      • How your donations help
      • Corporate partnerships and giving
        • Give as you earn with payroll giving
        • Meet our corporate supporters
      • Give in remembrance or celebration
      • Leave a legacy
    • Fundraise
      • Fundraise for us
      • Challenge events
      • Fundraising resources
      • Ways to fundraise
      • TSA fundraising campaigns
        • Superhero Summer
        • TSA Dog Jog
        • Room to Breathe – Branching Out for the TSA
        • TSA Lottery
        • TCS London Marathon
      • Fundraising champions
    • Join the conversation
      • Join TSA Voices: Share views quickly and easily
      • Getting to know you: Our ongoing survey
      • Share your story or expertise
      • Community groups and other groups
  • About the TSA
    • Keep updated
      • Sign up to our e-newsletter and monthly magazine
      • News and campaigns
      • Sign up to receive TSA updates
    • About us
      • Mission and vision
      • Meet your team
      • History of the TSA
      • Annual reports
    • Contact us
      • Click here to talk to us
      • Update your information
  • Information & support
    • TSC Overview
      • What is TSC?
      • Diagnosis
      • TSC and genetics
      • Treatment and management
    • Get help and support
      • Contact the TSA Support Line
        • Meet the TSA Support Line Advisers
        • TSA Support Line feedback form
      • Carer information and support
      • How to be referred to an NHS TSC clinic
        • Find a local NHS TSC clinic
      • TSA video hub
      • Access benefits and financial aid
        • TSA Support Fund
    • How TSC affects the body
      • Physical effects
        • Epilepsy
        • Brain
        • Heart
        • Lungs
        • Skin
        • Eyes
        • Kidneys
        • Other areas
      • Wider effects (TAND)
        • Intellectual ability
        • TSC-Associated Neuropsychiatric Disorders (TAND)
        • Sleep problems
  • Life with TSC
    • Living with TSC
      • TSC stories
      • New diagnosis
      • Living well
      • Siblings
      • Education
      • Employment
      • Housing
      • Holiday and leisure
    • TSC at different life stages
      • TSC and family planning
      • When TSC is suspected or diagnosed during pregnancy
      • Early years and childhood
      • Adolescents and transition to adult life
      • Women’s health
      • Adult life
      • Planning for end of life
      • Bereavement
  • For professionals
    • Professionals
      • Healthcare professionals
        • UK TSC clinical guidelines
        • Personal Child Health Record (Red book)
        • Advice on medicines
      • Social care professionals
      • Education professionals
    • TSC conferences
      • International TSC Research Conference 2021
    • Educational materials
      • TSA professional training courses
      • BMJ learning modules
  • Research
    • How we deliver research
      • Research governance and policies
      • Research strategy
      • Meet your research committee
      • Common questions about our research
    • TSA research
      • TSA-funded research
        • 2022 TANDem seed grant award round
      • TSC Research Volunteer Network
        • TS2000: Tracking TSC throughout life
        • BEE-PP project / BEE study
        • EDiTS study
        • CoIN study
        • The e-SNORE project
        • ACT in TSC trial
      • TSC research from other groups
      • Researchers in focus
    • TSC conferences
      • International TSC Research Conference 2021
        • ITSCRC 2021: Community recap
      • TSC Research Symposium 2020
  • Get involved
    • Our community events
      • Big Day 2025: Our biggest annual event
      • Outlook 2025: For adults mildly affected by TSC
      • TSA Together: Events by the TSC community, for the TSC community
      • TSA virtual and in-person events
    • Donate
      • Donate to the TSA
      • Regular Giving
      • Gift Aid
      • How your donations help
      • Corporate partnerships and giving
        • Give as you earn with payroll giving
        • Meet our corporate supporters
      • Give in remembrance or celebration
      • Leave a legacy
    • Fundraise
      • Fundraise for us
      • Challenge events
      • Fundraising resources
      • Ways to fundraise
      • TSA fundraising campaigns
        • Superhero Summer
        • TSA Dog Jog
        • Room to Breathe – Branching Out for the TSA
        • TSA Lottery
        • TCS London Marathon
      • Fundraising champions
    • Join the conversation
      • Join TSA Voices: Share views quickly and easily
      • Getting to know you: Our ongoing survey
      • Share your story or expertise
      • Community groups and other groups
  • About the TSA
    • Keep updated
      • Sign up to our e-newsletter and monthly magazine
      • News and campaigns
      • Sign up to receive TSA updates
    • About us
      • Mission and vision
      • Meet your team
      • History of the TSA
      • Annual reports
    • Contact us
      • Click here to talk to us
      • Update your information
  • Recent TSA-funded research findings published in Science

Recent TSA-funded research findings published in Science

The latest work of Dr. Kacper Rogala (Postdoctoral Fellow, Whitehead Institute, United States) and his team into the mechanisms of TSC cells was recently published in the research journal science. The Tuberous Sclerosis Association (TSA) proudly funds Dr Rogala’s research and is pleased to

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  • Vacancy: Fundraising Manager – Trusts and Foundations (part-time)

Vacancy: Fundraising Manager – Trusts and Foundations (part-time)

The Tuberous Sclerosis Association (TSA) is looking for a self-motivated, experienced and effective fundraising manager, who is ambitious about generating income to help people living with Tuberous Sclerosis Complex (TSC) and their families and drive research into this rare genetic condition.The position is home-based, part-time

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  • TSA Christmas 2019 opening times

TSA Christmas 2019 opening times

The TSA office will be closed for the 2019 Christmas period on Wednesday 25 December 2019, Thursday 26 December 2019 and Wednesday 1 January 2020. Enquiries received on these days will be answered as soon as possible once the office reopens. Normal working hours

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  • TSA says a fond farewell to Tanya Darnton

TSA says a fond farewell to Tanya Darnton

After seven years of hard work and dedication, the TSA is to say a heartfelt thank you and goodbye to Tanya Darnton (Fundraising Manager) in early January, when she moves on to a role away from our charity. Tanya has done an incredible job

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  • Dates for 2020 TSA events confirmed

Dates for 2020 TSA events confirmed

The Tuberous Sclerosis Association (TSA) is delighted to confirm dates for community events in 2020, including extra Family Fun Days! Get them marked in your calendar! By sharing the dates and locations of TSA community events as early as possible, we hope to make

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  • First Outlook 2020 sessions confirmed!

First Outlook 2020 sessions confirmed!

The TSA are delighted to confirm the first sessions that will be held at Outlook 2020, taking place 18 April at the Radisson Blu Hotel, Durham! The organising team, including our community committee, have been working hard to ensure that Outlook 2020 is a

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  • TSA support line pilot to begin Monday 10 February

TSA support line pilot to begin Monday 10 February

A pilot of the upcoming TSA support line will commence on Monday 10 February, in anticipation of the service’s full launch in April 2020. Any community members contacting the TSA’s support services from Monday 10 February will access the pilot scheme. As part of

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  • Rare Disease Day 2020: Celebrating the TSC community

Rare Disease Day 2020: Celebrating the TSC community

Rare is many. Rare is strong. Rare is proud . 29th February 2020 marks the 13th annual Rare Disease Day. Rare Disease Day, a global movement highlighting the voices of people affected by rare diseases around the world, is a vital opportunity to

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  • Coronavirus and TSC: Information for the TSC community

Coronavirus and TSC: Information for the TSC community

Last updated: 16 December 2021. This page will continue to be updated. . It is normal to have have questions or feel anxious about how covid-19 may affect you or a loved one who lives with TSC. The TSA is here for you,

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  • Positive wellbeing and calm during self-isolation

Positive wellbeing and calm during self-isolation

There are things that you can do to try and maintain positive wellbeing during the coronavirus outbreak, particularly if you are being asked to self-isolate or participate in social distancing. Here, we have provided a list of strategies and mechanisms to reduce feelings of

Read More
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Contact Us

The TSA,
Courtenay House,
Pynes Hill,
Exeter,
EX2 5AZ

 

Support enquires:

0808 801 0700
support@tuberous-sclerosis.org

 

Office enquires:

0300 222 5737
Admin@tuberous-sclerosis.org

 

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The Tuberous Sclerosis Association is a company limited by guarantee. Registered in England and Wales no. 2900107.
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