Rory O’Sullivan (University of Birmingham) is a final-year PhD researcher focused on the importance of sleep in children with rare genetic conditions, including TSC. We caught up with Rory to discuss his PhD research, what he likes to do in his spare time and
All this week, the TSA is proud to take part in Remember a Charity Will Week. This special campaign is an important reminder of the impact that leaving a charity gift in your Will can have on people facing the challenges of TSC, now
The TSA is a proud member of the Specialised Healthcare Alliance (SHCA), who last year released an important report evaluating the obstacles people face in getting diagnosis of a rare condition. One year on, the SHCA has released a troubling follow-up report showing that not
After a tough application process, we're delighted to welcome you to the chosen applicants for #TeamTSA at the London Marathon 2025! Choosing who would run for the TSA next year at the iconic London Marathon was an incredibly difficult process, with so many wonderful
Lace up your running shoes and make a real difference to individuals and families with TSC Applications for our TCS London Marathon 2025 charity places are open! We’ve got five exclusive spots for passionate people eager to join #TeamTSA and help transform the lives
Hearing the words Tuberous Sclerosis Complex for the first time is a life-changing moment for families all across the UK every day. But, the TSA is here for everyone in the TSC community on this journey. For the TSA Spring 2024 Appeal, we’re
Sunday 11 February marked International Day of Women and Girls in Science, a chance to celebrate the immense contributions of women and girls within the scientific community.   The TSA works very closely with many women across the world in TSC medicine and research. We’ll
Cannabidiol (brand name Epidyolex) is an important medicine option for people with hard to treat seizures associated with TSC. The journey of this and other treatments is the result of lots of hard work - especially for TSC researchers Those involved in Epidyolex included
It is with great sadness that the TSA must announce the passing of Tom Carter, TSA Trustee and Lifetime President, following a short illness Tom was a vital member of the TSA team, from the charity's early years right through to the present day.
The TSA is proud of our position as a leader in global TSC research. However, research can only happen thanks to amazing people in the TSC community taking part There are currently lots of new opportunities to get involved in TSC research. To make
