Today we see Sarah, Darren, Nicholas A, Nicholas M, Neil, Steven and Graham - our amazing seven members of #TeamTSA - take on the Virgin Money London Marathon 2017. There is still time to read their full stories and to support them with their

  Today we are thrilled to able to tell you all that a massive £18,109 has been raised for us by our incredible seven #TeamTSA heroes of the 2017 London Marathon – Sarah Bell, Nicholas Annear, Nicholas Myerson, Darren Pascoe, Steven McCloy, Neil Henderson and

Do you want one of these beauties for yourself? If so, the ballot for the 2018 London Marathon opens today (1 May) for five days only at https://www.virginmoneylondonmarathon.com/en-gb/ Don't delay - sign up on today!

  Disability Rights UK (DRUK) project, I Can Make It, aims to improve the employment opportunities of young disabled people. Funded by Comic Relief, the project created two short films, showing young disabled people at work, talking about what work means to them. Disability Rights

#volunteersweek is coming up soon - 1 June to 7 June and we'd love to be able to share as many images as we can of all of you who have volunteered for us in any way - be that helping to raise funds, give

In the UK, 1 in 17 people will be affected by a rare disease at some point in their life: this amounts to approximately 3.5 million people. Rare, genetic and undiagnosed conditions are often life-long and serious, affecting multiple systems of the body. Many of

A new project has been launched by The Salvesen Mindroom Centre, in collaboration with The University of Edinburgh and The James Lind Alliance and the team behind it would love to get the opinions of as many people as possible.   Research Priorities for Learning Difficulties in Children and

The Bristol Regional Group met on Saturday, 10 June at Windmill Hill City Farm for the first time. The venue proved to be a big draw with around 20 adults and children affected by TSC from the South West regional coming along to enjoy the

Hello. My name is Louise Fish, and I have been in post as the TSA’s new Chief Executive since 5 June.  As many of you already know, the TSA is celebrating its 40th anniversary this year and I am honoured to be the organisation’s second

Between Wednesday 14 June and Friday 16 June please take a look at our Twitter feed www.twitter.com/uktsa where we are supporting the Association of Medical Research Charities #charityimpact campaign. The @AMRC Twitter campaign is aiming to show just how much money 140 UK charities, including the Tuberous Sclerosis Association, are contributing