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Getting to know you: Our ongoing survey

How we keep up with what’s most challenging for the TSC community

We’ve been proud to reach an amazing number of people in the TSC community over recent years. It’s vital that we know more about you and how TSC impacts the lives of you and your loved ones.

The more we know about you and your TSC, the bigger our impact will be. For example, you might tell us things about living with TSC that we wouldn’t have known otherwise – this’ll mean that we can then look at how we can do more in this area.

Your feedback and views will also help us to secure funding for future projects that might not be possible right now, as well as help us to improve on the things we already do.

Help us today by completing our new ‘Getting to Know You’ survey. It’ll take about 10 minutes, so grab a cuppa and a biscuit and take the time to make a big difference.

To complete the survey please click here.

Make a one off or regular  donation

£10 Can allow us to send a welcome pack to a family who has just received a life-changing TSC diagnosis, ensuring that they do not go through this time alone.

£25 Can help us develop materials that are included in our support services, flagship events or campaigns.

£50 Can provide laboratory equipment for a day’s research into the causes, symptoms, management or treatment of TSC.

To provide help for today and a cure for tomorrow