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Find a local NHS TSC clinic

Information and contact details for NHS TSC clinics across the UK

There are NHS TSC clinics across the UK, with specialist clinicians and researchers in each who understand the impact that living with TSC can have on individuals and families.

NHS TSC clinics are run by TSC specialist doctors and nurses who volunteer to work at their NHS TSC clinics in addition to their day jobs. Each NHS TSC clinic depends on funding from specialised services. Each clinic will have a limited number of appointments each month. What you experience at an NHS TSC clinic will vary depending on which clinic you are referred to.

Here, we have provided a run-down of the different clinics, including contact details, to help facilitate referrals.

Click the clinic that you are interested in via the drop-down menu below.

If there isn’t a local NHS TSC clinic in your area, you can ask your GP to refer you to your local genetics clinic. Most clinical genetic services have a professional who oversees patients with TSC, which means they may have a certain level of TSC expertise. They may also be able to refer you on to the nearest NHS TSC clinic as necessary.

Please note: NHS TSC clinics are run by TSC specialist doctors and nurses who volunteer to work at their NHS TSC clinics in addition to their day jobs. Each NHS TSC clinic depends on funding from specialised services. Each clinic will have a limited number of appointments each month. What you experience at an NHS TSC clinic will vary depending on which clinic you are referred to

England

Type of clinic: Adults and children

Location: Bath

Address: Tuberous Sclerosis Complex Team, Children’s Centre, Royal United Hospital Bath, Combe Park, Bath, BA1 3NG

Clinic lead(s): Prof Finbar O’Callaghan and Dr Ron Loh

Referral pathway: E-referral for local referrals or by letter via GP or any specialist

Contact: Ms Charlotte Reed

Tel: 01225 821 545

Email: charlottereed1@nhs.net

Website: Click here

Type of clinic: Children only

Location: Birmingham

Address: Birmingham Children’s Hospital, Steelhouse Lane, Birmingham, B4 6NH

Clinic lead(s): Dr Shakti Agrawal and Dr Larissa Kerecuk

Referral pathway: Letter or email via GP to secretaries

Tel: 01213 338 704

Email: karenquinn1@nhs.net

Type of clinic: Adults only

Location: Birmingham

Address: Ground Floor, Heritage Building, Queen Elizabeth Hospital Birmingham, Mindelsohn Way, Edgebaston, Birmingham, B152QW

Clinic lead: Dr Graham Lipkin

Referral pathway: Via GP or consultant. Preferred that initial scanning to be done pre-clinic referral

Contact: Emily Cooper

Tel: 01213 718 707

Email: emily.cooper@uhb.nhs.uk

Website: Click here

Type of clinic: Children only

Location: Bristol

Address: Paediatric Neurology, University Hospitals Bristol NHS Foundation Trust, Education Centre, Level 6, Upper Maudlin Street, Bristol, BS2 8AE

Clinic lead: Dr Sam Amin

Referral: Clinic letter from any treating clinicians or GP

Contact: Sally Smith (secretary)

Tel: 0117 3420167

Email: sally.smith@uhbw.nhs.uk

Website: Click here

Type of clinic: Children

Location: Cambridge

Address: Child Development Centre, Box 107, Addenbrooke’s Hospital, Cambridge, CB2 2QQ

Clinic Lead: Dr Alasdair Parker

Referral pathway: To Dr Alasdair Parker via the local paediatrician

Tel: 01223 216 662

Email: alasdair.parker@addenbrookes.nhs.uk

Type of clinic: Adults

Location: Cambridge

Address: Box 165, Addenbrooke’s Hospital, Cambridge, CB2 0QQ

Clinic Lead: Dr Anke Hensiek

Referral pathway: Via GP to the local specialist in the area and if the issue can’t be dealt with, then onward referral to the specialist team (remote meeting every six months) at Addenbrookes

Tel: 01223 217603 (Secretary: Sharon Fryer)

Email: ahensiek@nhs.net

Type of clinic: Children only

Location: Leeds

Address: Children’s Outpatients, C Floor Martin Wing, Leeds General Infirmary, Great George Street, Leeds, LS1 3EX

Clinic lead(s): Dr Helen McCullagh and Dr Eric Finlay

Referral pathway: To Dr Helen McCullagh via GP or local paediatrician

Enquiries: Louise Higgins

Tel: 0113 3928 046, but email contact is preferred

Email: louisea.higgins@nhs.net

Website: Click here

Type of clinic: Children only

Location: Liverpool

Address: Paediatric Neurodisability, Alder Hey Children’s NHS Foundation Trust, Eaton Road, Liverpool, L12 2AP

Clinic lead: Dr Zahabiyah Bassi

Referral pathway: Referrals from Consultant Paediatrician responsible for care of the child with TSC preferred. Also accept referrals from other clinicians and GP, but should ensure local paediatrician is aware of the referral or could be rejected. Online referrals preferred (click here for form). Also accept clinical letters to Dr Bassi.

Email: commpaedsqueries@alderhey.nhs.uk

Tel: 0151 252 5972 / 0151 282 4930, Ext 4100

Website: Click here

The TSC clinic is held every month and is jointly run by a neurodevelopmental paediatrician, with expertise in: Neurodisability, Paediatric Neurologist, Paediatric Nephrologist, Clinical Psychologist. A Physician Associate is also in attendance, who is the care coordinator for the TSC service.

Type of clinic: Adults only

Location: Liverpool

Address: Tuberous Sclerosis Clinic, Department of Nephrology, Royal Liverpool Hospital University Hospital Trust, Prescott Street, Liverpool, L7 8XP

Clinic lead(s): Dr Asheesh Sharma and  Dr Christine Burness

Referral: Formally in writing by GP, hospital consultant or other health professional.

Contact: Paula Meah

Tel: 01517063429

Email: paula.meah@liverpoolft.nhs.uk

Website: Click here

Type of clinic: Children only

Location: London

Address: Paediatric Neurosciences, Level 2 Becket House, Evelina London Children’s Hospital, Westminster Bridge Road, London, SE1 7EH

Clinic lead: Dr Jill Cadwgan

Referral: Clinic letter from any treating clinicians or GP, must have local secondary care paediatric lead

Contact: Claire Grochocki (secretary)

Tel: 020 7188 4003

Email: claire.grochocki@gstt.nhs.uk

Type of clinic: Adult only

Location: London

Address: Paediatric Neurosciences, Level 2 Becket House, Evelina London Children’s Hospital, Westminster Bridge Road, London, SE1 7EH

Clinic lead: Dr Laura Mantoan

Referral: Clinic letter from any treating clinicians or GP, via post or email

Contact: Margaret Reid (secretary)

Tel: 020 3229 8337

Email: margaret.reid15@nhs.net

Type of clinic: Adults only

Location: London

Address: Renal Genetics Clinic, Royal Free Hospital, Pond Street, London, NW3 2QG

Clinic lead: Dr Daniel Gale

Referral: Via GP, nephrologist, neurologist or paediatrician

Email: RF.TSC@nhs.net

Type of clinic: Adults and children

Location: London

Address: SW Thames Regional Genetics Service, St George’s University of London, Cranmer Terrace, London, SW17 0RE

Clinic lead: Dr Frances Elmslie (Consultant Clinical Geneticist)

Referrals: By letter or electronically to dedicated email from GPs, primary, secondary or tertiary care

Contact: Ms Lydia Israel (TSC Nurse Specialist)

Tel: 020 8725 1688

Email: TSCreferrals@stgeorges.nhs.uk

Website: Click here

Type of clinic: Adults and children

Location: Manchester

Address: Manchester Centre for Genomic Medicine, Sixth Floor, Saint Mary’s Hospital, Oxford Road, Manchester, M13 9WL

Clinic lead: Dr Liz Jones (Consultant Clinical Geneticist)

Referral: To Dr Liz Jones via the GP, medical specialist, specialist nurse or healthcare professional in the North-West region

Tel: 0161 701 5104

Website: Click here

Type of clinic: Adults and children

Location: Newcastle

Address: Paediatric Outpatient Department, Great North Children’s Hospital, Royal Victoria Infirmary, Queen Victoria Road, Newcastle upon Tyne, NE1 4LP

Clinic lead(s): Dr Yincent Tse (Paediatric Nephrologist) & Prof John Sayer (Nephrologist)

Referral: To Dr Yincent Tse

Tel: 0191 282 4917

Email: yincenttse@nhs.net

Type of clinic: Adults and children

Location: Nottingham

Address: Department of Clinical Genetics, City Hospital Campus, The Gables, Gate 3, Hucknall Road, Nottingham, NG5 1PB

Clinic lead: Dr Jaqueline Eason (Consultant in Clinical Genetics). Dr Rana Mohamed, Paediatric Neurologist at Queen’s Medical Centre (Nottingham University Hospitals) is working in partnership with the genetic team. Referrals may be directed to Dr Mohamed if appropriate.

Referral: Written referral to Dr Jacqueline Eason from any health professional

Contact: Janine Bowes (Genetic Counsellor)

Tel: 0115 962 7728

Email: nuhnt.clinicalgenetics@nhs.net

Website: Click here

Type of clinic: Adults and children

Location: Sheffield

Address: Sheffield Kidney Institute, Sorby Renal Outpatient Department, Northern General Hospital, Herries Road, Sheffield, S5 7AU

Clinic lead: Dr Roslyn Simms (Consultant Nephrologist)

Referral pathway: Electronic referral service by GP or by email

Tel: 01142 715 326 or 01142 714 410

Contact: Sister Janet McCormick (Renal Nurse Specialist)

Website: Click here

Please note: Nephrology clinic only but can refer onto appropriate specialists where required

Type of clinic: Adults and children

Location: Cornwall

Address: Truro is an outreach clinic held by the local learning disability team in Threemilestone

Clinic leads: Prof Finbar O’Callaghan and Dr Ron Loh

Referral pathway: All referrals and correspondence come via the Bath TSC clinic. E-referrals for local referrals, or letter by the GP or any medical specialist

Tel: 01225 821 545

Email: charlottereed1@nhs.net

Referral: GP or any specialist involved in the person’s care can refer. E-referral for local referrals or by letter. Referrals should be made out to Bath clinic address.

Held by local learning disability team in Threemilestone (Prioritise patients with LD who may be less able to travel to Bath).

Type of clinic: Adults only

Location: York

Address: Tuberous Sclerosis Clinic, Neurology Department, York Teaching Hospitals NHS Foundation Trust, Wigginton Road, YO31 8HE

Clinic lead: Dr Clare Johnston (Consultant Neurologist)

Tel: 01904 725 754

Northern Ireland

Type of clinic: Adults and children

Location: Belfast

Address: Belfast City Hospital, 51 Lisburn Road, Belfast, BT9 7AB

Clinic lead: Dr Deirdre Donnelly

Email: deirdre.donnelly@belfasttrust.hscni.net

Referral: GP, hospital doctor, midwife, self-referral all accepted – to be sent to Dr Deirdre Donnelly

Tel: 07909538792

Email: deirdre.donnelly@belfasttrust.hscni.net

Scotland

Type of clinic: Child and adult

Clinic lead: Dr Shelagh Joss

Email: Shelagh.Joss@ggc.scot.nhs.uk

Telephone: 0141 354 9222

Location: Glasgow

Referral: Clinic letter from any treating clinicians or GP

Address: Clinical Genetics Outpatient Dept, Level 1, Laboratory Medicine Building, Queen Elizabeth Hospital, Glasgow, G51 4TF

Clinic lead: Dr Shelagh Joss

Wales

Type of clinic: Adults and children

Location: Cardiff

Address: All Wales Medical Genomics Service (AWMGS), Institute of Medical Genetics, Cardiff and Vale UHB, Heath Park, Cardiff, CF14 4XW

Clinic lead: Dr Jennifer Gardner (Consultant Clinical Geneticist) 

Referral pathway: Via GP or other specialist to Dr Jenny Gardner

Contact: Karen Bailey (TSC Clinical Nurse Specialist)

Email: se.genetics@wales.nhs.uk

Tel: 02921 847451

Website: Click here

Please note: The phone numbers noted on the ‘contact us’ section of the website are for Swansea, Cardiff and North Wales. The clinic is currently looking into organising a generic email address for the service, which will be updated as soon as more details are received.

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£10 Can allow us to send a welcome pack to a family who has just received a life-changing TSC diagnosis, ensuring that they do not go through this time alone.

£25 Can help us develop materials that are included in our support services, flagship events or campaigns.

£50 Can provide laboratory equipment for a day’s research into the causes, symptoms, management or treatment of TSC.

To provide help for today and a cure for tomorrow