An exciting new project has been launched to better understand different challenges in rare diseases. Led by Kings College London, researchers will focus on the rare diseases that are connected to part of the body called the 'mTOR pathway'. The TSA is proud to

The TSA is seeking a highly experienced, confident and capable Head of Fundraising to provide leadership and direction on all aspects of income generation. This is an exciting time to join a small but hugely impactful charity where you will make a real difference

The Specialised Healthcare Alliance (SHCA) has released an important report highlighting the obstacles people face in getting diagnosis of a rare condition, with recommendations included on how this can be improved. As a proud member of the SHCA, we wholeheartedly endorse this proactive call