The European Patients Academy on Therapeutic Innovation (EUPATI) has launched a toolkit to provide information for anyone who is interested in learning more about the medicines research and development (R&D) process. The press release below describes the context and development of the toolkit. Additionally, you

A new report shows that many people with TS may not be receiving the right care and treatment. TSA Trustee Dr Chris Kingswood and our CEO Dr Jayne Spink are both amongst the authors of the report which you can read HERE Analysis of routine

SAVE THE DATE: 17th September 2016 Where: Nottingham Belfry, Mellors Way, Off Woodhouse Way, Nottigham, NG8 6PY Event details:             At this full day event you will have a chance to hear speakers giving updates on research and attend workshops

Rare Disease Day, 29th February 2016 We are expecting that NHS England will give their decision on whether the NHS in England will fund Everolimus for TSC patients with SEGA’s and AML in March.  We want the voices of people with TSC to be heard,