A pilot of the upcoming TSA support line will commence on Monday 10 February, in anticipation of the service’s full launch in April 2020. Any community members contacting the TSA’s support services from Monday 10 February will access the pilot scheme. As part of

Rare is many. Rare is strong. Rare is proud . 29th February 2020 marks the 13th annual Rare Disease Day. Rare Disease Day, a global movement highlighting the voices of people affected by rare diseases around the world, is a vital opportunity to

Last updated: 16 December 2021. This page will continue to be updated. . It is normal to have have questions or feel anxious about how covid-19 may affect you or a loved one who lives with TSC. The TSA is here for you,

There are things that you can do to try and maintain positive wellbeing during the coronavirus outbreak, particularly if you are being asked to self-isolate or participate in social distancing. Here, we have provided a list of strategies and mechanisms to reduce feelings of

Last updated: 17 February 2021. This page will continue to be updated with the latest information if advice changes. You or someone that you know might have received a message from the UK Government about ‘shielding'. Shielding is a measure to protect people who

The global coronavirus pandemic is continuing to affect all aspects of daily life, including at the TSA. Our amazing charity, committed to improving the lives of people affected by TSC across the UK, has been assessing the effects of the spread of coronavirus on

Born to be Different is an ongoing programme on Channel 4 that follows the lives of six families affected by different conditions. Paula Davis and her family, including son William who lives with TSC, are one of the families participating in the programme. We

We recently hosted the first ever virtual Outlook session, with adults mildly affected by TSC coming together virtually. Now, you can watch recorded sessions from the event whenever you want! The Outlook virtual meeting 2020 was a great success, showing the potential for video

Last updated: 17 August 2020. This page will continue to be updated with the latest information if government advice changes. We know that many people in the TSC community will have questions about what the guidance on returning to education means for you and

Have you used the TSA Support Line? We want to hear from you! The TSA Support Line is a major area of our support and information services for everyone in the TSC community. Although we have developed the TSA Support Line to be as