Presentations from the Tuberous Sclerosis Association's (TSA's) Big Day 2019, our biggest event of the year, are now available to community members to view and download. Big Day 2019 welcomed individuals living with Tuberous Sclerosis Complex (TSC) and their family members to connect and
The TSA has extended the period for the TSC community from across the UK to share their concerns and hopes ahead of the upcoming launch of the UK-wide TSA support line. The TSC community can share feedback with the TSA through a support line
The latest work of Dr. Kacper Rogala (Postdoctoral Fellow, Whitehead Institute, United States) and his team into the mechanisms of TSC cells was recently published in the research journal science. The Tuberous Sclerosis Association (TSA) proudly funds Dr Rogala’s research and is pleased to
The Tuberous Sclerosis Association (TSA) is looking for a self-motivated, experienced and effective fundraising manager, who is ambitious about generating income to help people living with Tuberous Sclerosis Complex (TSC) and their families and drive research into this rare genetic condition.The position is home-based, part-time
The TSA office will be closed for the 2019 Christmas period on Wednesday 25 December 2019, Thursday 26 December 2019 and Wednesday 1 January 2020. Enquiries received on these days will be answered as soon as possible once the office reopens. Normal working hours
After seven years of hard work and dedication, the TSA is to say a heartfelt thank you and goodbye to Tanya Darnton (Fundraising Manager) in early January, when she moves on to a role away from our charity. Tanya has done an incredible job
The Tuberous Sclerosis Association (TSA) is delighted to confirm dates for community events in 2020, including extra Family Fun Days! Get them marked in your calendar! By sharing the dates and locations of TSA community events as early as possible, we hope to make
The TSA are delighted to confirm the first sessions that will be held at Outlook 2020, taking place 18 April at the Radisson Blu Hotel, Durham! The organising team, including our community committee, have been working hard to ensure that Outlook 2020 is a
A pilot of the upcoming TSA support line will commence on Monday 10 February, in anticipation of the service’s full launch in April 2020. Any community members contacting the TSA’s support services from Monday 10 February will access the pilot scheme. As part of
Rare is many. Rare is strong. Rare is proud . 29th February 2020 marks the 13th annual Rare Disease Day. Rare Disease Day, a global movement highlighting the voices of people affected by rare diseases around the world, is a vital opportunity to
