Professor Sue Povey Memorial Symposium, Friday 12 July
Last month, we were saddened to share the news that pioneer geneticist and TSC researcher Professor Sue Povey had passed away. University College London are organising a Memorial Symposium in honour of Professor Povey’s remarkable work, taking place on Friday 12 July. If you are
The TSA supports Rare Disease UK’s Rare Reality campaign
The TSA is pleased to announce its official support for Rare Disease UK’s Rare Reality campaign, which has been launched in the run-up to Rare Disease Day 2019 on 28 February. Rare Reality aims to illustrate the experiences of people with rare diseases and those
Vacancies at the TSA
The TSA are looking for two new people to join our team, with positions available for a new Head of Research and an Events and Communications Assistant. More information on the roles, their requirements and how to apply are available on our vacancies page.
Louise Fish: Why Rare Disease Day is so important
In honour of Rare Disease Day our CEO, Louise Fish, took the time to explain why today is such an important day for the millions of people affected by a rare disease worldwide, including people living with TSC: Rare Disease Day (28 February 2019) is an
Tributes to Stephen Dale
The TSA were very saddened to hear of the passing of Stephen Dale, a prominent and popular member of the TSA Outlook Group. Tributes and kind messages for Steve have flooded in, including the following two tributes by former TSA Trustee, Corinne Swainger, and Steve’s
TSA auction: x2 tickets for The Price (London West End) plus aftershow drinks with David Suchet
The TSA is excited to announce a very special auction which is now underway: Two tickets to see Arthur Miller’s The Price in the London West End, PLUS post-performance champagne drinks with the play’s star, David Suchet! All proceeds of the auction will go towards
TSA website survey: we want to hear from you!
To help the TSA best serve our community and support those affected by TSC, we have developed a short survey so that we can better understand how people use our website. The survey can be completed here: https://www.surveymonkey.co.uk/r/2VL8TDF. The survey should take around two minutes
Outlook 2019 tickets now available
The TSA is delighted to confirm that free tickets for Outlook 2019 are now available via Eventbrite here, with more information on what is planned for the day available here. Outlook 2019 will take place on Saturday 18 May at the Bristol Mercure Holland House
TSA publishes summary of the UK’s first clinical guidelines on TSC
The TSA is pleased to share our summary of the first ever UK clinical guidelines for TSC, which were published by Oxford University Press in QJM: An International Journal of Medicine last year. The UK clinical guidelines summary can be viewed and downloaded here: {module_literature