The TSA office will be closed for the 2018 Christmas period between Tuesday 25 December 2018 and Tuesday 1 January 2019. Although some members of the team will still be around during some of this time, responses from us may take longer than usual

The TSA is delighted to announce that NHS England has backed recommendations from the Clinical Priorities Advisory Group to fund everolimus for the treatment of refractory epilepsy in people with Tuberous Sclerosis Complex (TSC) in England. Everolimus will be funded from April 2019. NHS England’s

NHS England has launched its ‘Long Term Plan’, which sets out NHS England’s priorities and objectives for the next 10 years to ensure that it is ready for the challenges of the next decade. The Long Term Plan includes information on care for people with

The TSA is sorry to hear that Professor Sue Povey, whose ground-breaking genetics research into TSC led to major advances in our understanding of the condition, has sadly passed away. Most recently Professor Emeritus of Human Genetics at University College London, Professor Povey was a

Register your place at the TSC patient conference - Understanding TSC-Associated Neuropsychiatric Disorders (TAND) - taking place at Belfast City Hospital on Friday 25 January 2019, 09:15 - 16:15. The conference will feature a full day of varied and interesting talks and workshops from a

The TSA is delighted to confirm that Outlook 2019 will take place on Saturday 18 May in Bristol, at the Mercure Bristol Holland House Hotel. Outlook is a free event for adults living with TSC, offering the opportunity to make new friends (and meet with

It was with great sadness that we brought you news earlier this month that Professor Sue Povey, a pioneer in the field of genetics and TSC, had passed away. Here Professor Julian Sampson (Director, Division of Cancer and Genetics, Cardiff University and Professor Sue Povey’s

Drumroll please….. we are introducing our amazing #TeamTSA London Marathon 2019 team. Please read below to learn about our fantastic five and why they have chosen to run to raise funds for the TSA! Also included are all the ways you can support them! Steve

On 25 January 2019, the TSA patient conference ‘Understanding TSC-Associated Neuropsychiatric Disorders (TAND)’ took place at Belfast City Hospital.  The meeting featured a full day of varied and interesting talks and workshops from a wide range of TSC professionals including:  Prof Petrus de Vries (Professor

As the countdown to Rare Disease Day 2019 begins, the TSA is proud to announce their support for this internationally-recognised occasion and want you to get involved!  Organised by patient organisation EURORDIS, Rare Disease Day takes place on 28 February and is an important opportunity