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Saturday 18 April 2020

10:00am – 16:00pm

Radisson Blu Hotel, Durham

Are you an adult mildly affected by TSC? Come along to Outlook to make new and meet old friends, share experiences about TSC and attend interesting workshops and talks.

From group firewalks to TSC clinic updates, previous Outlooks have had everything! Not to mention lots of opportunities to connect with other adults who understand the impact that living with TSC can have. However, Outlook attendees are encouraged to go at their own pace.

All adults mildly affected by TSC will receive a warm welcome at Outlook, whether it is their first time at the event or if they come every year.

You’ll find lots of handy information below about Outlook 2020, with more information and updates provided as we get closer to the day itself. If you have any questions not covered here, be sure to get in touch via comms@tuberous-sclerosis.org / 0300 222 5737.

Outlook is an event hosted by the TSA, where adults mildly affected by TSC can come together and connect.

Offering a relaxed, open and understanding environment of the impact that living with TSC can have on individuals and families, Outlook is one of the longest-running events hosted by the TSC.

An agenda for Outlook 2020 will be provided in good time before the event itself.

Outlook 2020 will take place on Saturday 18 April at the Radisson Blu Hotel in Durham (Google Maps).

Durham is very well connected for public and private transport. The city lies just off the A1 motorway and its train station forms part of the major east coast network, with LNER, CrossCountry, TransPennine Express and Northern Rail all operating from the station.

Outlook 2020 tickets are free, with attendees encouraged to give a donation to the TSA in lieu of a ticket payment.

Tickets will be available directly from the TSA website, with an announcement made by the TSA when they go on sale.

Outlook is targeted towards adults (aged 18+) who are mildly affected by TSC.

Outlook is a warm, friendly and understanding space. You will be given a very warm welcome amongst people who understand the impact that TSC can have on individuals and families. Whether you come to Outlook every year or if this is your first time, we will be delighted to have you there!

Over the years, Outlook has featured many different things! You can expect everything from TSC-focused talks and topics, like research updates and clinician Q&As, to broader subjects such as mindfulness, yoga and keeping fit and healthy. However, the focus is very much on being an adult mildly affected by TSC.

We always ensure that there are lots of opportunities for Outlookers to get to know one-another on the day, with plenty of breaks and chances to speak to each other and make new friends (or catch up with old ones).

Not sure if you will want to take part in a session or workshop on the day? No problem! At Outlook, you can go at your own pace and choose how much you want to get involved.

The agenda for Outlook 2020 will be announced in good time before the event itself.

There will be no care or assistance provided by the TSA for attendees of Outlook 2020. Those who require a carer or assistant are kindly asked to organise their own arrangements to ensure their personal safety, mobility and/or comfort.

We know that some people will prefer to stay the night before Outlook and we are working hard to secure competitive rates and a room hold for those who would like to stay at the Radisson Blu on the Friday. More details will be shared on this as soon as possible.

Those who wish to stay on the Friday will be asked to book directly with the Radisson Blu, but please contact the TSA’s support team if we can be of assistance.

Please note that Outlook officially starts on Saturday 18 April 2020 and no overnight care or assistance will be provided. Attendees who choose to stay the night prior to Outlook must do so only if they are comfortable and capable of independent care or are able to organise assistance themselves.

Although Outlook does not officially start until Saturday 18 April, a meal at the Radisson Blu will be arranged for the evening before (Friday 17 April). For those who would like to join us, you are very welcome to come along!

More details on the meal and how to be a part of it will be shared as soon as possible, but it attendance is not required as part of Outlook.

Parking is available at the Radisson Blu and is free for delegates coming to the hotel for the event only. Delegates who will be staying the night prior to Outlook at the Radisson Blu will be required to pay for overnight parking, but the TSA is working hard with the hotel to make this as affordable as possible.

More details will be shared as soon as possible once we have this confirmed with the hotel.

We are always looking for ideas and advice from the TSC community on how to shape all of our events, including Outlook! If you have any suggestions, be sure to let us know by contacting comms@tuberous-sclerosis.org.

“Over the past 15 years, the Outlook event has given me more confidence in myself, living and working with TSC on a daily basis. It’s a chance to have fun, find out how others are dealing with similar challenges, and learn about new medical treatments and opportunities. I’ve also made some fabulous friends I keep in touch with through social media.”

– Outlooker

“I find Outlook events informative. You get to learn a lot about TSC and take part in workshops. You can speak to and meet people who live with TSC, so you don’t feel alone. You can also become pen friends with Outlookers later or socialise on social media”

– Megan Hattersley

Make a one off or regular  donation

£10 Means that we can send a support pack to a family who has just received a life-changing TSC diagnosis, ensuring that they do not go through this time alone.

£25 Can help us develop materials that are included in our support services, flagship events or campaigns.

£50 Can provide laboratory equipment for a day’s research into the causes, symptoms, management or treatment of TSC.

To provide help for today and a cure for tomorrow.