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Northern Ireland Study Day

The Northern Ireland Study Day is an opportunity for the Tuberous Sclerosis Complex community in Northern Ireland to get together

Do you live in Northern Ireland and are either affected by Tuberous Sclerosis Complex (TSC) or work with people who live with the condition? The Northern Ireland Study Day is for you!

The Northern Ireland Study Day is an opportunity for the TSC community in Northern Ireland and professionals focused on the condition to come together.

Come along to connect with other community members who understand the impact of TSC, talk to professionals about the condition and feel closer to the Northern Ireland TSC community.

The Northern Ireland Study Day 2019 took place at Belfast City Hospital, on Friday 25 January. Thank you to everyone who came along!

Northern Ireland Study Day 2019

DATE:
Friday 25 January 2019

TIME:
10am – 5pm

WHERE:
Belfast City Hospital

What happened at the Northern Ireland Study Day 2019?

Attendees of the Northern Ireland Study Day 2019 were able to:

  • Hear and learn from professionals as they discussed key topics in the care, management and research of TSC
  • Meet new friends and see old faces of the Northern Ireland TSC community
  • Learn more about the projects and plans of the TSA

What are the plans for the Northern Ireland TSC community in 2020?

A date and further information about our plans for an event in Northern Ireland for 2020 is expected very soon.

Help us organise Northern Ireland events!

We are always looking for ideas and advice from the TSC community on how to shape all of our events, including those in Northern Ireland. If you have any suggestions, be sure to let us know by contacting comms@tuberous-sclerosis.org.

Speakers at the Northern Ireland Study Day 2019 included:

  • Prof Petrus de Vries (Professor of Child and Adolescent Psychiatry, University of Cape Town, South Africa)
  • Rachel Hardy (Genetic Counsellor, Belfast Trust
  • Genetic Alliance UK
  • Fiona O’Donnell (Community Support & Information Officer, The Special Educational Needs Advice Centre)

Make a one off or regular  donation

£10 Means that we can send a support pack to a family who has just received a life-changing TSC diagnosis, ensuring that they do not go through this time alone.

£25 Can help us develop materials that are included in our support services, flagship events or campaigns.

£50 Can provide laboratory equipment for a day’s research into the causes, symptoms, management or treatment of TSC.

To provide help for today and a cure for tomorrow.